Ferris’s journey continues . . . ‘We really couldn’t have asked for a better day’ . . . ‘I’m so proud of her’

How did Ferris Backmeyer handle Friday after having undergone a kidney transplant overnight Thursday?

Ferris, 6, asked to call her friend Amilia.

As Ferris’s mother, Lindsey, wrote: “We really couldn’t have asked for a better day!!”

The Backmeyers — Lindsey and Pat, with daughters Ferris, Ksenia and Tavis — are from Kamloops. They have been in Toronto for a couple of weeks now, first preparing for Ferris to undergo a kidney transplant at the Hospital for Sick Children and now going through the recovery phase.

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Ferris Backmeyer, 6, spent Friday resting up after having undergone a kidney transplant in Toronto. (Photo: Lindsey Backmeyer/Facebook)

Ferris has had kidney issues for almost all of her young life, and Lindsey has done a wonderful job of documenting it all on Facebook.

Doing this no doubt is therapy of sorts for Lindsey, but it also is a way to keep in touch with family and friends via one posting, thus cutting out the need for a thousand different messages.

We can only imagine how many hours Lindsey has spent sitting in hospitals or Ronald McDonald House in Vancouver over the past six years, potential scenarios flipping through her mind with uncontrolled randomness.

When she posted in the wee hours of Saturday, it was impossible not to feel the excitement that was coursing through her system.

“I had considered what it might look like for things to have gone smoothly,” she allowed, “but, even then, it didn’t look like (Friday) . . . it was smoooooth!!!”

How smooth was it?

“Urine output amazing all day long. She weaned off really high doses of (norepinephrine) once she woke up! Maintained her (blood pressure) throughout the day, including when she napped this evening! Ultrasound looked great. She hardly skipped a beat.”

Ferris talked with her mother “about the things we played with (Thursday).”

And, yes, she asked “to phone her friend Amilia.”

But wait . . . there’s more!

“She was awake for several hours,” Lindsey continued. “Sat up a bunch of times. Played a bit. Ate some food. Was mostly kept comfortable. If she didn’t have her history she would have definitely been sent out of ICU (Friday) evening! Like holy heck girl!! Way to goooooo!! I’m so proud of her.”

However, you can’t have been on this ride with Ferris for these past years and FerrisLogonot come to expect the worst. You know how it goes . . . hope for the best and . . . It’s only human nature that the Backmeyers have experienced that time and time again.

At one point, Lindsey wrote: “I hate living in this constant fear of all the worst things.”

So why should things be any different this time?

“I’ve found myself holding my breath a lot of the day. Waiting for her to start to crash. But she didn’t,” Lindsey wrote. “Beyond my wildest expectations, we have gotten to the other side. I am constantly checking myself as to not get too excited. Knowing there are going to be some really hard days ahead.”

Lindsey, who has worked as a respiratory therapist at Royal Inland Hospital in Kamloops, knows that her youngest daughter “definitely isn’t out of the woods in terms of clotting and/or bleeding for that matter.”

But there have been so many positive signs since surgery that “I’m gonna choose to celebrate today as a huge (bleeping) win!! Im gonna allow myself to dream a little that things could actually just be amazing. We are coming from such a bumpy world that we were ready for something new if even if it came with a different kind of hard.”

OK. So what’s next?

Lindsey is anxiously awaiting Ferris’s being moved out of ICU and onto a ward, which will mean mother will get to sleep next to daughter.

“I’m exhausted,” Lindsey admitted. “My one-hour attempt at a nap ended up being four solid hours. Ferris napped late in the day so has just fallen asleep. I can’t sleep at her bedside so I’m off to find a ‘parent recliner’ with hopes Ferris is asleep for the night!”

And don’t think for a moment that the Backmeyers, even with all that has been happening, aren’t aware of the thoughts and prayers and love that have been sent their way.

“Once again, thanks so much to everyone for all the support,” Lindsey wrote “It’s been incredible!! It’s been exactly what we didn’t know we needed!! My brain is super fried, so the words really aren’t there to genuinely express how loved we feel! But we feel it! It’s so tangible! Love you guys.”

——

Leah Scott, a mother of three from Kamloops, was involved in Ferris’s transplant via the paired exchange program. Ferris and Leah weren’t matches, but Leah gave a kidney to a stranger in order for Ferris to receive a kidney from someone else, all as part of a chain.

On Saturday, Leah wrote:

“The final part of our journey to donation and transplant was spent finalizing testing, prepping, and a lot of breath-holding while we were continually reminded this could be called off right up to the day. And 20 days before our original surgery date, it was.

“For some painstaking days it all hung in the balance. But we got a new date. In two months. It felt too long. Too far. Yet in the end it set the stage for me to do some very important things at home for my own family and allowed my buddy to be her strongest and most ready that her family had ever seen.

“The timing was indeed perfect. The week was pretty textbook. My recipient took their kidney right away and was doing well. My buddy defied all odds and rocked her surgery better than anyone could have hoped for. It played out just as I had envisioned hundreds of times.

“I am forever changed. My faith is deeper and richer. I am humbled to have been called to something so much bigger than myself. The honour has been mine to be part of giving life to others.”

Ferris stable early after kidney transplant . . . Good news: ‘There is a big bag of pee’ . . . Youngster’s journey enters new chapter

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Ferris Backmeyer, 6, was stable early Friday after undergoing a kidney transplant in Toronto. (Photo: Lindsey Backmeyer/Facebook)

Those people following the Backmeyer family’s journey through daughter Ferris’s second kidney transplant were greeted by seven glorious words on Friday morning.

“There is a big bag of pee.”

That was part of a brief update from Lindsey Backmeyer, Ferris’s mother, after her six-year-old daughter had undergone a kidney transplant during the night at Toronto’s Hospital for Sick Children.

The Backmeyers are from Kamloops.

“She’s been out for a few hours now. She’s stable,” Lindsey wrote on Facebook. “There is a big bag of pee. The doctors are all very happy with how she’s doing. Her surgeon told me it was a beautiful kidney and it woke up right away!”

All of that is awesome news. The fact that the new kidney quickly sprung into action and began producing urine is as good as things get at this stage.

“Her creatinine was already down to 120s,” Lindsey continued. “She’s breathing kinda fast and looking pretty puffy, but is managing okay at the moment.

“They are only replacing what comes out now. Let today be smooth and not scary!!”

——

To date, this has been a year of high stress for the Backmeyers, who had to relocate to Vancouver early on as Ferris encountered some infection issues that resulted in her having to be transitioned from peritoneal dialysis to hemodialysis. BC Children’s Hospital in Vancouver is the only place in the province where children are able to receive hemo.

At the same time, the family was prepping for an April 25 transplant date in Toronto. However, that date was cancelled a week before as there was a break in the chain.

Ferris’s second transplant was done via the paired exchange program. While there was a break in the chain in April that wasn’t the case on Thursday.

The paired exchange program works like this: A donor, in this case Leah Scott of Kamloops, agrees to donate a kidney to a stranger, but only if the person she is acting on behalf of, in this case Ferris, gets one. What it amounts to is that Ferris and Leah weren’t matches, but when a match was found for Ferris, Leah offered to stay in the chain and see the process through to its end.

Due to privacy concerns, we aren’t privy to how many people are in a chain, but it could be four, six, eight . . . so you know that the logistics are something to behold.

——

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Ferris was looking rather chipper on Thursday before she underwent a kidney transplant. (Photo: Lindsey Backmeyer/Facebook)

Lindsey wrote that the family — father Pat and older daughters Ksenia and

Tavia also are in Toronto — enjoyed Thursday before Ferris went into surgery that night.

“Mostly perfect day today,” Lindsey wrote. “(Ferris) would have said today was a great day although I’m not so sure what she’s gonna think of us all when she wakes up. She hopefully had her last hemo run.”

With all the testing behind her, Ferris was able to spend time with her family.

“She had zero tests so we took her for a walk to the park in the afternoon,” Lindsey said. “She FaceTimed auntie Terri and her friend Amilia! The day went by fairly quickly overall. She was a happy little clam all day.”

At the time Lindsey was writing this, Ferris likely was undergoing her second transplant in two years.

“It’s late here and she’s been in for a few hours now. Still a few more to go,” Lindsey wrote. “She had moments of being nervous today but she mostly was just so incredibly brave. Love her soooo much! Can’t wait to hold her again!”

——

This was the second time that Ferris underwent a transplant. She went through one on March 6, 2021, at BC Children’s Hospital, but there were complications and the new kidney had to be removed not long after it was put in place.

She has known almost nothing but dialysis, either peritoneal or hemo, for most of her young life. She wasn’t a candidate for a transplant earlier because of her small size and an inability to put on weight and keep it on.

There almost was transplant surgery in December 2020. The Backmeyers were at home in Kamloops when they got the call that a kidney was available for transplant. They left for Vancouver, but the surgery was cancelled at the last minute.

The transplant on March 6, 2021, followed.

After that transplant attempt failed, Lindsey explained:

“Urology basically said the donor kidney was perfect but it was challenging to anastamose to Ferris because of the size of her vessels. He basically said he wouldn’t consider another transplant again until she’s bigger, which terrifies me because she isn’t growing well on dialysis at all.

“He worried they underestimated her heart health and it might not have been strong enough to perfuse the organ. This is big scary stuff.”

But now, about three years after the Backmeyers were given the go-ahead to look for a living donor, here we are.

——

While the Backmeyers were in Toronto awaiting Thursday’s surgery, Leah Scott was in an undisclosed location where she had a kidney surgically removed earlier in the week. That kidney was then transplanted into a recipient as part of the chain that also included Ferris.

“I don’t believe that God ever needs us to fulfill His purpose,” Leah, a mother of three, wrote on Facebook on Thursday. “But I do think He chooses to use us when we are willing to say yes. And I think the blessing is that we get to be part of something so much bigger than ourselves. I believe the day is today.

“As hope builds within this sweet child’s community and this wave of green ribbons spreads and the anticipation rises that her win is here . . . I am so thankful I had the opportunity to say yes. It’s your day sweet girl. We all feel it!”

——

Perhaps no one summed up the emotions of all this any better than did Andrew Scott, Leah’s husband, who wrote:

“For anyone not already following along on Leah Scott posts, her recipient now has a working kidney.

“Ferris also got her kidney (Thursday) night. The surgery went well and now she begins her recovery.

“Continue to pray for Leah, Ferris and all of the other donors and recipients. This is a truly touching story and I fight back tears every time I read about lives being changed and all of the support and prayer covering these fighters have.

“Truly humbling.”

The story of kidney transplant process, from recipient’s mother and a living donor . . .

All signs are pointing to this being a big week for the Backmeyer family of Kamloops, what with Ferris, 6, in line to get a new kidney at the Hospital for Sick Children in Toronto.

The Backmeyers have been in Toronto for a couple of weeks now and it seems that things have gone well to this point. So sometime over the next few days Ferris just might get a kidney from a living donor via the paired exchange program.

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Lindsey Backmeyer and Ferris, her six-year-old daughter, are in Toronto and they’re ready for a second kidney transplant. (Photo: Lindsey Backmeyer/Facebook)

What follows is the story of people involved in this chapter of Ferris’s life and what they have gone through and continue to experience as the transplantation process moves along.

On Sunday, Lindsey, Ferris’ mother, introduced the world to Leah Scott and, in the process, provided a great look at the process.

“If you don’t already know,” Lindsey wrote on Facebook, “this beautiful human is Ferris’s paired exchange donor. Leah Scott has been working toward this now for 2.5 years!!!!

“I met Leah at work. She worked in emerg (at Royal Inland Hospital in Kamloops) and I made friends with one of her besties. Friendly acquaintances at best. However, she heard about Ferris and Leah’s remarkable ability to put herself into another’s shoes led her to where we are today. She has felt a calling and has fought really hard to get where she is today. All while living her life, raising her kids, working her business!!

“Donating a kidney in Canada isn’t an easy process. Aside from the fact that she’s going to give Ferris her second chance, she’s become one of my biggest cheerleaders and offers support like none other.

“I sit here (Sunday night), knowing that this is all happening sooooon. We aren’t allowed to talk about dates, times and locations but we are in Toronto (everyone knows that already) and by the end of this week my girl should be on the other side.

“Leah has started her journey. She’s left her kids with family and is with her husband awaiting her surgery which is soon.”

When it happens, it will be the second transplant that Ferris will have undergone. The first one, from a deceased donor, took place on the afternoon of March 6, 2021, at BC Children’s Hospital in Vancouver. However, there were complications and the kidney was removed later that night.

Between then and now, there were lots of twists and turns, including one that involved another person who was found to be a match for Ferris. With all that’s happening now, Lindsey couldn’t help but think of her.

“I think about how we even got here (in Toronto) and it really wouldn’t be without Ferris’s original donor,” Lindsey wrote. “The one who brought us to Toronto in the first place. She’s a nurse who works at (B.C. Children’s Hospital) and Canuck Place. She heard about Ferris in one of her nursing groups at the time of her failed transplant.

“I won’t disclose her name as she remained mostly anonymous throughout the whole process. We did connect just a week before I learned about the second kidney via paired exchange. She’s lovely. Has a big beautiful family. She didn’t want me to feel like I owed her anything and also wanted to be sure it was ‘on’ before reaching out.

“She was a good match for Ferris but BCCH surgeons didn’t feel comfortable doing the surgery. Knowing how challenging it is to find a good match she asked if they would get a second surgical opinion. She just wanted the best for Ferris and I can’t help but love her for that.

“A perfect stranger . . . that’s what got us access to Toronto Sick Kids Hospital. If it wasn’t for her, we wouldn’t be HERE!”

And now the Backmeyers are ready, as is Leah Scott.

“Leah, we love you!! You’re so special and will always be loved by our family,” Lindsey wrote. “I hope everything goes so smoothly for you. I’ll be thinking of you tons as you prepare for this. It’s friggin huge. We are finally here. Huge hugs!!!”

As for Leah, she also took to Facebook, writing that “2.5 years ago, God laid it on my heart to donate (a) kidney to a child of a friendly work acquaintance. I started the process to get tested knowing deep in my spirit that I would be part of her story. During my testing, she got a deceased donor kidney and I wondered if I heard wrong. But that kidney was unsuccessful. So I kept going until they told me I was a match! But then they told me they didn’t want my kidney because it was too big and I could get out of the donation program. I said I would stay. Because I knew that God had other plans . . .

“A couple of months after, they told me that they didn’t need me anymore and they weren’t pursuing paired exchange at this time. We found out Ferris was highly sensitized, meaning it would be close to impossible to find her a new kidney. So I reached out to ask to be retested and we were no longer a match.

“But . . . they were willing to try the paired exchange program if I was willing to be paired with her, meaning if a kidney came up for her, she would get that one and I would give mine to a stranger.

“I said, ‘Yes.’ That was 1.5 years ago.

“While we waited on the paired exchange list, another living donor came up. She was slated for transplantation in April. I had no idea why God had called me to this but it seemed like it wasn’t going to be me to be part of her journey after all.

“Every week our paths crossed at piano lessons for this past year. Every week, I prayed that I would see what God had for me next. Maybe someone else would need a kidney and I was ready.

“Then on Feb. 3, 2023, I got a call from the donor program. They had a better kidney (that is her miraculous just-right match) in the program if I was willing to donate.”

That brings us to this week. The Backmeyers are in Toronto. Leah Scott will be in a hospital somewhere in Canada; the location is known only to a few because of privacy concerns. But the preliminary testing is over and there doesn’t appear to be anything but green lights.

So let’s keep these folks in our thoughts and prayers as the clock ticks.