In the words of her mother, Lindsey, Ferris Backmeyer “is a free bird” today.
Ferris, a six-year-old from Kamloops, is in Toronto with her family, recovering from a kidney transplant that was done at the Hospital for Sick Children.
The joy this family — it includes Pat, Lindsey’s husband, and older sisters Tavia, 11, and Ksenia, 9 — now is feeling just bursts off the computer screen as one reads Lindsey’s latest Facebook post.
“Nineteen hospital sleeps was 100% worth it to be right where we are. On the other side,” Lindsey writes. “It’s pretty (bleeping) dreamy!! It was the most surreal hospital experience we’ve ever had. A really quick recovery from a post-op/pain perspective and then a kid who is the least sick that she’s ever been in hospital!”
Remember that Ferris hasn’t known much but kidney problems and dialysis — either peritoneal or hemo — for most all of her short life. What she is experiencing now is unbelievably awesome.
After undergoing the transplant, Ferris’s recovery was interrupted a tad by a bladder leak that required the installation of a catheter. But Lindsey reports that the leak “appears to have healed up well” and the catheter has been removed
Lindsey adds:
“The last week she has felt pretty good. No pain meds at all. Just waiting for the catheter and drain to come out. We managed to go out on passes in the afternoon/evening knowing that if the ultrasound looked solid (Sunday) we would get to leave (Monday)! It took allll day but we left at dinner time.
“We’ve been to this park daily and so far it’s filling her cup! That, and the Krispy Crèmes!!”
Now . . . if you’ve been following Ferris’s story for any length of time and are aware of what this family has been through, well, try reading this without things getting a bit misty.
“We’ve had so many sweet moments over the past couple of weeks,” Lindsey writes. “The big one is the eating. She’s no longer getting any tube feeds at all. Eating way too much food and meeting her fluid goals for the day. Watching her try new foods and demolish whole meals puts the biggest smile on my face. It’s unbelievable but also something I just knew was in her future.”
The really good news is that Ferris’s new kidney “continues to be soooo happy. There’s still some fine-tuning to be done with getting her weight down safely. She breathes really fast and her X-ray showed fluid on her lungs. I see it in her (impossible not to with a respiratory rate in the 60s) and it’s really hard to watch but her sats and heart rate are happy. It’s been that way for a couple weeks now and she’s pretty fine otherwise. But something I’d love to improve!”
For now, the Backmeyers will hang around Ronald McDonald House and wait for a transfer to BC Children’s Hospital in Vancouver. If all goes well that move could take place in two weeks. After that, well, it would home to Kamloops for the first time in months.
And they really are going to enjoy the next couple of days because their medical team doesn’t want to see Ferris until Thursday.
“We haven’t had two whole days away from a hospital since the end of February!!” Lindsey notes. “That’s a huge win if you ask me!! It’s been 2.5 weeks since she’s had a dialysis treatment! There are wins falling from the sky lately!”
Lindsey also has maintained a sense of humour through all of this, and you can feel it as she writes: “Hell, I even finally got my first EI cheque . . . I’ve only been off work for four months already but yay for finally getting that sorted out!”
So . . . Lindsey, please tell us how you really feel . . . how you really, really feel.
“Life feels incredibly easy right now,” she writes. “Waiting for the shoe to drop but the longer we go with steadiness that fear settles a bit. This is not how we typically do things! Smoooooth! We literally just do meds and go for bloodwork and ultrasounds.”
You may not be aware that there isn’t a cure for kidney disease. Once you have it there isn’t any shaking it. Transplant recipients, while freed from having to do dialysis, are on a rather serious drug regimen.
Here’s Lindsey describing Ferris’s situation as of now:
“The meds are pretty intensive with several being cytotoxic and she’s on a schedule that has us giving meds five times throughout the day and a once daily injection. But it’s not a record amount of drugs for us by any means.
“It was definitely a record amount of money spent though!! Today’s bill was $2,000 for a three-week supply . . . which is trying to be sorted out for us. I’m fairly certain we will pay and then get reimbursed for a big chunk. It’ll be a non-issue once we get back to B.C.
“She’s on immunosuppressants, antibiotics, antiviral, antifungal, blood-thinner injections and a handful of others. I’m just not used to getting such a big bill for meds she’s already been on before and were covered.”
Yes, there are some considerable differences in what is/isn’t covered between Ontario and B.C.
Of course, to see Ferris and where she’s at now, well, everything this family has been through has been worth it.
“I’m like you realize we’ve done all these things for years. Right?” Lindsey concludes. “(It’s) all worth it to be where we are at right now. I can dream dreams that feel so within our reach I can taste it!! Some normalcy. Meds. That’s it!! Okay . . . so far I think we got this!!”
F Connor Bedard, the first overall selection in the NHL’s 2023 draft, signed a three-year entry-level contract with the Chicago Blackhawks on Monday, which just happened to be his 18th birthday. . . . Bedard dominated talk in the first four months of 2023, thanks to his performance with Team Canada at the World Junior Championship and the last three months of what likely have been the last season of his WHL career with the Regina Pats. . . . Bedard, at 17, led the WHL in goals (71) and points (143), and was tied for the lead in assists (72), all in 57 games. . . . At the WJC, he put up 23 points, nine of them goals, in seven games. He led the tournament in points as he set a Canadian single-tournament record. He was fourth in tournament scoring for the 2023 event. . . . Bedard was named the CHL’s player of the year, the IIHF’s male player of the year and won the E.J. McGuire Award of Excellence that is presented by NHL Central Scouting to the “draft prospect who best exemplifies commitment to excellence through strength of character, competitiveness and athleticism.” . . . Because he’s 18, Bedard will have to be returned to the Pats for the 2023-24 season, unless he makes the Blackhawks’ roster. . . . On which option are you betting? LOL!! . . . Bedard and the Blackhawks open the regular season on Oct. 10 in Pittsburgh against F Sidney Crosby and the Penguins.
Headline at The Beaverton (@TheBeaverton) — Bettman vows to build a whole new city in Arizona if he has to.
JUNIOR JOTTINGS:
Geoff Walker is the new hockey operations general manager and head coach of the AJHL’s Drayton Valley Thunder. . . . In each of the past two seasons, he guided a Superior International Junior Hockey League team to the Centennial Cup tournament, getting there with the Red Lake Miners in 2022 and Kam River Fighting Walleye last season. . . . In Drayton Valley, Walker replaces Corey Bricknell, who stepped up from associate coach to take over from Sean Brown on Jan. 10. The team had announced on June 5 that Bricknell would be returning for a second season, but that apparently isn’t going to happen. . . . Bricknell still shows up on the Thunder website, now as an Edmonton scout. . . .
Cole McCaig is returning to the SJHL’s Flin Flon Bombers as their assistant general manager and assistant coach. He has agreed to a one-year contract extension. McCaig has been with the Bombers since signing on as assistant coach for the 2018-19 season.
Lew Morrison, who played with the Flin Flon Bombers, died on Saturday. He was 75. . . . A native of Gainsborough, Sask., he grew up in Hartney, Man. . . . He was selected by the Philadelphia Flyers with the eighth overall pick of the NHL’s 1968 draft. He played his first three NHL seasons with the Flyers, then went on to the Atlanta Flames, who claimed him in an expansion draft, Washington Capitals, who also grabbed him in an expansion draft, and Pittsburgh Penguins. He finished with career totals of 39 goals and 52 assists. . . . Morrison retired after scoring six times and adding 14 assists in 65 games with the AHL’s Binghamton Dusters in 1977-78. . . . In 1966-67, he helped the Bombers to the MJHL championship with 25 goals and 40 assists in 44 games. The next season, Morrison had 26 goals and 23 assist with the Bombers in what was then the Western Canadian Junior Hockey League. . . . He was inducted into the Manitoba Hockey Hall of Fame in 2017.
If you are interested in being a living kidney donor, more information is available here:
Living Kidney Donor Program
St. Paul’s Hospital
6A Providence Building
1081 Burrard Street
Vancouver, BC V6Z 1Y6
Tel: 604-806-9027
Toll free: 1-877-922-9822
Fax: 604-806-9873
Email: donornurse@providencehealth.bc.ca
——
Vancouver General Hospital Living Donor Program – Kidney
Gordon and Leslie Diamond Health Care Centre
Level 5, 2775 Laurel Street
Vancouver, BC V5Z 1M9
604-875-5182 or 1-855-875-5182
kidneydonornurse@vch.ca
——
Or, for more information, visit right here.
TAKING NOTE 