Kamloops kidney news: Rosalyn, Jim and friends go walking; Ferris goes to Toronto; Zach goes golfing

Walk
The Butterfields — Rosalyn (left) and Jim (third from left) — were joined by family and friends for a Hike4Mike at McArthur Island in Kamloops on Sunday.

Rosalyn and Jim Butterfield are part of the Kamloops kidney community, which is why a few of us gathered at McArthur Island on Sunday afternoon.

Their son, Mike, who lives on the Lower Mainland of B.C., has polycystic kidney disease (PKD) and recently started dialysis. Yes, he needs a kidney transplant. He is on the transplant list and fingers are crossed that his time will come soon.

PKD is a mostly hereditary disease, according to the Mayo Clinic, “in which clusters of cysts develop primarily within your kidneys, causing your kidneys to enlarge and lose function over time. . . . It’s not uncommon for people to have (PKD) for years without knowing it.”

Also from the Mayo Clinic: “Sometimes a genetic mutation occurs on its own (spontaneous), so that neither parent has a copy of the mutated gene.”

The PKD Foundation of Canada reports that PKD “is one of the most common life-threatening diseases, affecting approximately one in 400 to one in 1,000. It does not skip a generation. There is usually a family history of the disease and parents . . . have a 50 per cent chance of passing the disease on to each of their children.

PKD “is passed from one generation to the next by an affected parent. . . . Scientists have also discovered that approximately 10 to 20 percent of the PKD patient community became affected through spontaneous mutation.”

According to Rosalyn, her family falls into that latter category.

Rosalyn and Jim showed up three or four years ago for a gathering of the Kamloops Kidney Support Group. Their son had been diagnosed with KPD and hey had a whole lot of questions that we tried to answer as best we could. Since then, they have continued to join our sessions when possible.

On Sunday, then, a group of family and friends took part in a ‘Team Hike4Mike.’ We weren’t trying to raise money or anything like that. It was simply a show of support for the Butterfields, who continue to try and raise the profile of PKD,

Donor
Rosalyn and Jim Butterfield had this sign installed in the rear window of their vehicle as they searched for a kidney for their son, Mike.

Meanwhile, Ferris Backmeyer, 5, and her mother, Lindsey, of Kamloops arrived in Toronto late Saturday.

They are in for a busy couple of days as Ferris, who was diagnosed with kidney disease shortly after birth, is to be introduced to the staff at the Hospital for Sick Children.

Ferris
Lindsey Backmeyer and her daughter, Ferris, enjoyed a quiet flight to Toronto on Saturday. (Photo: Lindsey Backmeyer/Facebook)

Lindsey posted on Facebook that Ferris will have Monday appointments from 8 a.m. through 3:30 p.m., and then be involved in “sleep study” that night.

“She leaves that to immediately start another full day off appointments (on Tuesday),” Lindsey posted on Facebook. “Wednesday is full, too, and we go from the hospital to the airport. Home midnight Wednesday.”

You may recall that Ferris underwent a transplant in Vancouver in March 2021. However, a kidney that was transplanted one afternoon was removed that night because of developing issues with it.

The Backmeyers have held out hope since then that another kidney could be found for transplant, but that hasn’t happened. The plan now is for a different medical team to get an up-close look at Ferris with the hope that new eyes may see new opportunities.

As Lindsey wrote on Saturday after arriving in Toronto: “Ferris really enjoyed the day today. She travelled amazingly well. I’m really proud of her. This is going to be an adventure for all of us. Short. Whirlwind. Hopefully life changing. The journey to get here is just the beginning!”


Zach
Zach Tremblay looks to be enjoying himself as he helps play host to the Children’s Organ Transplant Society’s annual golf tournament. He is the society’s 2022 Ambassador. (Photo: Children’s Organ Transplant Society)

Zach Tremblay of Robson, B.C., who also is awaiting a kidney transplant, was in Vancouver for the weekend in his role as the Children’s Organ Transplant Society’s 2022 Ambassador. He helped the society play host to its annual Classic Golf Tournament.

When at home in Robson, Zach, 19, makes the drive to Trail three times a week in order to undergo dialysis. Born with renal hypoplasia-dysplasia, he underwent a transplant on June 1, 2017. Unfortunately, there was a problem and the transplanted organ had to be removed.

His mother, Jana, told Gord McIntyre of Postmedia: “What should have been a fairly routine four-hour surgery lasted about eight hours. They finally came and found my husband and me to tell us that a technical error had been made during the surgery and it cut off the blood flow to the kidney.”

McIntyre added: “Two more surgeries were performed overnight trying to save the kidney. When a test the next morning showed the kidney was not functioning, Zach required a fourth operation within 24 hours to remove the failed organ.”

Now we are heading to the end of 2022 and Zach continues to wait for another chance.

Zachposter2





If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca

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Vancouver General Hospital Living Donor Program – Kidney 

Gordon and Leslie Diamond Health Care Centre

Level 5, 2775 Laurel Street

Vancouver, BC V5Z 1M9

604-875-5182 or 1-855-875-5182

kidneydonornurse@vch.ca

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Or, for more information, visit right here.


Want an easy win to feel great? Register to be an organ donor today. It will only #TakeTwoMinutes and you could save a life. Great deed and fuzzy feels without any hassle. #Register2Give taketwominutes.ca

Remember that you don’t have to be a match to specific recipient in order to be a kidney donor . . .


Eight days after being the donor and recipient of a kidney transplant at Vancouver General Hospital, Michael Teigen and Stephen Gillis appeared on CTV Morning Live on Wednesday.

Gillis, the recipient, and Teigen both are doing well and are walking billboards for the entire process.

The conversation — and this is really good stuff — is right here.


The Children’s Organ Transplant Society issued this release on Tuesday:

“We have been receiving a lovely number of messages asking about how to be tested as a living kidney donor for Zach Tremblay. Thank you to our community for spreading the word! However, as a charity we cannot provide confidential medical information about Zach’s history or present condition, as well as any other transplant children. Please know that we would love to direct you to the right place, but cannot answer questions about Zach’s personal health. If you would like to apply for living donation, please contact St. Paul’s Living Donor Program.”

So here’s the deal . . .

You don’t have to be a match to Zach if you are interested in helping him. If you aren’t a match, you are able to help him through the Living Donor Program. If you were deemed to be an eligible donor via that program, you would donate a kidney to someone else, quite likely a stranger, but on the condition that Zach got a kidney.

That is exactly how my wife, Dorothy, received a kidney more than six years ago. Her best friend donated a kidney through the Living Donor Program at St. Paul’s Hospital in Vancouver. That kidney went to a stranger, while Dorothy received a kidney from another stranger.

So remember . . . you don’t have to be a match in order to help Zach, a 16-year-old from Robson, B.C., who has been in Vancouver since early January. He has transitioned from peritoneal dialysis to hemp-dialysis, but won’t be going home until there is room for him in the dialysis unit at the hospital in Trail.

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


OrganDonation



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