Transplant really a kidney miracle . . . Others, like Zach Tremblay are waiting, hoping . . . Can you help?

Christmas2019
Kara looks over her new piano on Christmas morning, as her Dad and Grandma look on.

If you are a regular here, you will be aware that Dorothy, my wife of 47 years, underwent a kidney transplant on Sept. 23, 2013.

If you’re not, well, here’s the story . . .

We will be forever grateful to the two people most responsible for what really has been a

DandK-20180922
Grandma giving Kara a lesson in September 2018.

new lease on life. Dorothy’s best friend, who has been a bestie for a long, long time, was convinced from the outset that she would be the donor. However, as it turned out, she wasn’t a match for Dorothy.

Still, she wanted to make sure that Dorothy got a new kidney. So they both went into the Living Kidney Donor Program. And that is how Dorothy came to get a new kidney.

Her best friend, who has never wanted attention for what she did, gave a kidney to a stranger, but on the condition that Dorothy get one from someone else, which is what happened. We don’t know who got the friend’s kidney; we don’t know who was Dorothy’s donor.

But as far as Dorothy is concerned, her best friend was her donor.

What has a new kidney meant for Dorothy?

For starters, it got her off dialysis. She had done peritoneal dialysis (PD) for four years prior to the transplant.

Kara-20170413
Kara, with one of her first gifts from Grandma.

It also meant that she was here for the birth of her first grandchild — Kara. She lives with her father, our son Todd, and his wife, Joanna, in Burnaby.

It also has allowed Dorothy to experience, among so many other things, the joy of four Christmases with an energetic and oh, so happy Kara.

Dorothy plays piano by ear and really loves it. She volunteers at a seniors’ residence in Kamloops and often is asked to play piano there. Her love for the piano has meant that her granddaughter has twice received small ones for Christmas, including a toy miniature grand this time around.

What I am trying to say through this meandering message is this: I would hope that you would at least consider being a live kidney donor. The difference such a decision could make in another person’s life is incalculable.

Remember that a transplant isn’t a cure for kidney disease. There quite simply isn’t a cure. Still, a transplant is nothing short of a miracle for the recipient.

Yes, Dorothy and I experienced a miracle more than six years ago and we are thankful every day.

So, please, at least think about it.

——

There are a lot of people out there who are waiting and hoping. They awaken every single day and wonder if this will be the day they get THE phone call . . . a match has been found . . . there’s a date for surgery . . . the load has started to lift.

People like Zach Tremblay, a 16-year-old from Robson, B.C., which is across the Columbia River from Castlegar. Zach now spends more than half of every day doing dialysis.

On Saturday, Zach’s mother, Jana, posted this update on Facebook:

“As 2019 draws to a close, and we enter the 5th year of dialysis, I can’t help but be a little sad we are still waiting. So many shares, so many messages from people asking how to be tested, and no matches so far.

“2019 was rough on him. September’s scare and hospital stay being especially trying, and bringing about many changes in his energy level, anxiety and, in turn, his therapy.

“He now does 14 hours of therapy a day. So he spends more than half his 24-hour day doing dialysis. No 16-year-old should be spending the majority of his time doing this.

“Please share his story far and wide and as often as possible and help us make 2020 HIS year.

“May 2020 bring nothing but great things to you all . . . and as always, we appreciate each and every one of you for staying on the ride and loving and supporting our boy and our family.”

(I wrote about Zach in October, and you can find that piece right here.)

——

Joan Alexander, a friend of Jana’s, followed with this:

“As my two-year anniversary as an anonymous kidney donor gets closer, I am beginning Zacha social media blitz to get Zachary Tremblay the kidney he needs!

“My journey began because of Jana Tremblay’s posts about organ donation. As the mother of two healthy sons, I immediately was drawn into this family’s story. Although I was not able to donate to Zach directly, I decided to donate anonymously and someone in British Columbia became my recipient.

“How can you help? Share this post, make (the accompanying two-year-old) photo of Zach your profile pic, learn more (call the St. Paul’s Living Donor Program), get tested, say a prayer or make a wish . . . all of this and more will help.

“It is no small thing to donate an organ. But I would do it again in a heartbeat if I could! Message me if you would like to talk.

“Zach now is 16 years old. He is hooked up to dialysis 14 hours each and every day.”

——

As we prepare to head into a new year, it would be terrific if it really became a year to remember for people like Jana and Zach Tremblay and their family.

If you are interested in more information, here you go:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca

A plea from the wife of a friend who needs a kidney . . . Are you able to help? The info you need is right here

Vic Morin is a regular at our Kamloops Kidney Support Group meetings and has become a good friend. He was with us on Sept. 11, just last week, when he informed us that he was soon to begin peritoneal dialysis. With that in mind, he was to have had a catheter surgically implanted into his peritoneal cavity on Sept. 25.

But, when you have kidney disease, things are out of your control and can change in a hurry. On Thursday night, his wife, Colleen Bruce, made an emotional plea on Facebook:

SEPTEMBER 19, 2019 — It’s been close to 8 months since I first posted our story in search of a living kidney donor for my husband, Vic.

At the time of the posting, Vic’s kidney function (GFR) was holding at 19, but over the next few months it began to drop quickly. On Wednesday, he had his regular monthly lab work and he now is at 6. Today (Thursday) was a very emotional day as we got a call from the Kamloops Kidney Clinic advising that Vic was in kidney failure and needs to start emergency hemo dialysis tomorrow (Friday).

He was scheduled for surgery next week to place a catheter into his peritoneal cavity (lower abdomen) so he could start peritoneal dialysis within a month after the healing was complete; unfortunately, his kidneys can’t wait that long and now he will have a central line inserted into his neck so he can start on the hemo-dialysis tomorrow.

I know dialysis will help but it is only a temporary solution like a Band-Aid is to a wound; what Vic desperately needs is another kidney. I have seen the immense drop in his energy level over the past few months. His zest for life is slowly disappearing as he knows he is slowly getting sicker and sicker.

As I am typing this tonight, I have tears running down my face as it breaks my heart because I know I can’t give him the one thing that will make him better — a new kidney.

I’m once again reaching out to anyone and everyone that I can in search of a living kidney for my beautiful husband.

When we were down at St. Paul’s Hospital in Vancouver at the end of April to the meet the kidney transplant team, we were reminded by one of the doctors that kidney donors live a long and healthy life with just one kidney. They are thoroughly screened before the transplant and they will only proceed if the donor is healthy and if there are no risks to him/her.

Once they have donated their kidney, they are continually being monitored over the years and if any other unrelated health ailments arise such as, say, cancer or heart disease, it will be diagnosed earlier than the average person because they are being medically checked regularly and may have a stronger chance of overcoming the disease as it was caught early.

I’m hoping and praying that someone out there can give my husband the beautiful lifesaving gift of a kidney so he can have a long and healthy life. My original posting is shown below and it has all the information if someone choses to come forward and start the process of kidney donation. Thank you each and everyone for taking the time to read this UPDATE and once again, please “Share” our story so we have a strong chance of finding a living kidney donor.

——

January 24, 2019

Dear Family and Friends:

This is a difficult post for me to write, but I truly need your help. My husband’s kidney is failing and he is in desperate need of a kidney donor.

My wonderful husband Vic was diagnosed with CKD (Chronic Kidney Disease) more than five years ago and he has been monitored by doctors and nurses at the Kamloops Kidney Clinic, who have been extremely supportive over the years.

His kidney function, however, has been declining and he now is facing the reality of kidney failure. I have seen changes in him — tiredness, lack of interest in activities we both used to enjoy, and depression.

While dialysis is one option that can help short-term, it is not a cure. The average time on dialysis is five years, before total kidney failure. Our best option for him to have a long and healthy life is a live kidney transplant.

Vic completed his testing and is a good candidate. I completed all the testing to see if I was a good candidate for becoming a kidney donor, but unfortunately a call on Friday, Jan. 11, 2019 from St. Paul’s Hospital informed me I am unable to become a kidney donor because of my own health issues. It was a very emotional phone call. I now had to tell my beautiful husband I could not be his saviour. We both hoped I could be a donor for him, but that is not the case.

Now, I am desperately reaching out to as many friends and family online as I can in search of that kidney, which he needs so badly. We are hoping and praying someone will come forward and consider becoming Vic’s kidney donor. The more who come forward for testing, the better his chances for a match will be.

Doctors indicate that kidney donors live a normal and healthy long life with just one kidney. Donors are carefully medically screened to make sure it is safe for them to donate. The transplant team makes the donor’s health and well-being a priority before and after donation. We understand donors don’t have to be a relative or be an exact blood match in order to donate. We understand this is an extremely personal decision and there is a lot to think about.

If you would like more information or to explore kidney donation further, feel free to contact the donor nurse coordinator at St. Paul’s Hospital by calling 604-806-9027 (1-877-922-9822) or by emailing donornurse@providencehealth.bc.ca.

Vic’s legal name is Louis Victor Morin. If you call and they ask who the recipient will be, give them that name. Please know your inquiry, as well as the process for determining your eligibility as a donor, would all be kept confidential. St. Paul’s runs a very professional donor program and we will never be told if anyone has expressed interest in donating a kidney (unless you tell us of course).

Donors may change their mind at any time, even on the day of the transplant.

Thank you for letting me share Vic’s medical situation with you.