Zach facing one more speed bump . . . Mom: What we really need is a matching kidney

Zach16

So . . . you’ve got kidney disease . . . you go on dialysis . . . you get a new kidney.

Easy peasy! Right?

Oh, if only it was that easy. If only the process wasn’t so damn heart-breaking in some instances.

Zach Tremblay, a 17-year-old from Robson, B.C., needs a kidney. He has been on dialysis, peritoneal or hemo, since 2014. He had a live donor transplant in 2017 but there were complications and it didn’t work out.

He was doing peritoneal dialysis (PD) at home, but it began to lose its effectiveness as 2019 wound down, and he and his mother, Jana, ended up at B.C. Children’s Hospital in Vancouver where he was transitioned to hemodialysis.

That transition included the removal of a catheter that was used for PD and the insertion of a fistula to make hemo a bit easier by allowing an increase in blood flow.

So much for that.

On Thursday, Jana posted on Facebook:

“I guess to be blunt is best. The fistula surgery failed. We found out on Monday that the fistula has clotted off and did not grow. Fistula surgeries have a 25% failure rate, and he fell into that 25%. We are heartbroken and sad and angry and all the things. But at the end of the day, it doesn’t change that the surgery was a failure. It is unusable as an access for dialysis.

“We aren’t sure when, but another fistula surgery will be scheduled. Please keep sharing his story when you see it.

“A fistula is great, but what we really need is a matching kidney.”

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca

——

Shortly after Jana’s post hit Facebook, Joan Alexander replied with an emotional plea of her own:

“This is hard to read and even harder to live! Zach’s mom . . . has shared the most recent update on his journey with kidney disease. Zach is the reason I became a living kidney donor.

“I wonder sometimes if people get tired of reading my posts about organ donation. Well, I will not stop until Zach receives his gift! Please take a moment and read more about his journey on Jana’s page or on the public page: Zach Needs a Kidney . . . Like Yesterday!

“Getting tested to become a donor is so easy.”

——

Meanwhile, there was more news from Vancouver where Ferris Backmeyer continues her battle.

Her mother, Lindsey, reported via Facebook that Ferris celebrated something of a birthday . . .

“Well happy half birthday little miss! 3.5 years old . . . oh my!” Lindsey wrote. “Celebrated with a night-time discharge from the hospital and (Thursday) is a day completely free of appointments and dialysis!! She had HD (Wednesday) followed by 3 flushes of her PD cath and a sample was taken late (Wednesday) afternoon. The results came back at 8pm and cell counts continue to improve. Original samples haven’t grown anything so we’ve stopped the IV and oral antifungals. Which meant we could pull the IV and sleep in ‘our own’ beds!!

“Ferris is so happy to have her ‘colouring hand’ back! I’m hoping she will start to feel better as it’s become quite obvious with the IV med anyways that it really makes her feel like crap. Blood pressure has been pretty high lately and I’m fairly certain she’s lost some real weight and is ‘wet’ at 11.3kg. Feeling such a strong need to get back on PD so we can get more calories into her. The fluid restriction on HD makes it so ridiculously tough to grow her. She’s also pretty anemic so hoping once that improves we will see better energy. She seems to be recovering well from surgery and hasn’t had any Tylenol for over 24hrs.

“Plan is to be admitted Tuesday to start using the PD cath. It’ll be a hybrid of HD and PD for a little bit until we can hopefully switch over fully, pull the HD line and come home. Middle of August maybe? That’s the most current plan anyway.”

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


Mike




kidney2

Zach recovering after fistula surgery . . . Ferris finds two new friends . . . A kidney recipient says thanks


Zach16Zach Tremblay and his mother, Jana, arrived in Kelowna on Monday evening, and the 17-year-old underwent surgery on Tuesday morning.

He was in recovery later in the afternoon, at which time Jana reported:

“He is alert and awake with some pain.”

Zach and his family live in Robson, B.C., across the Columbia River from Castlegar. He is in need of a kidney transplant — would you consider helping? — and had been doing peritoneal dialysis (PD) on a nightly basis at home. However, it began to lose its effectiveness late in 2019, so he and Jana ended up at B.C. Children’s Hospital in Vancouver early in January and he was transitioned to hemodialysis.

Back home, he has been travelling to Trail, which is about 30 minutes from Robson, for his dialysis runs. After his Monday run, Zach and Jana left for Kelowna.

On Tuesday, doctors inserted a fistula, which will make doing hemodialysis easier, while also removing his PD catheter.

Zach was becoming more alert as Tuesday afternoon wore on, and Jana was hoping that he would be released so that they could spend the night with relatives in Kelowna. Either way, Zach is scheduled for a run this morning (Wednesday) in Kelowna.

“We will see how he’s feeling and decide whether to come home, or stay one more night,” Jana wrote on Facebook.

She closed with: “We sure appreciate each and every one of you loving and supporting our family.”

UPDATE: Zach was released from hospital last night, so he and Jana are overnighting with relatives in Kelowna. He will do a dialysis run this morning at 7:30. If he is feeling well enough after that, they will head for home. Otherwise, they will remain in Kelowna for the day to allow him to rest.


What follows is a note received recently by a kidney donor from the person who has a new lease on life having received that kidney:

“Thinking of you today. Anniversary of my Kidney is here again. A huge thank you for your willingness and your sacrificial donation. You are the angel that just showed up and caused my life to thrive again. Blessings to you!

“I am healthy and things are going well.

“Praying you are doing well. 

“May God’s love and protection surround you and your family.”

Yes, I get a lump in my throat and things get a little dusty when I read things like that because Dorothy and I have driven that same road. There are no words to explain how much that gift of life means.


FerrisFriends
Ferris found two new friends while she and her family explored Granville Island this week. (Photo: Lindsey Backmeyer/Facebook)

Meanwhile, the Backmeyers continues to explore Vancouver’s waterfront between having to get Ferris, 3, to B.C. Children’s Hospital for her dialysis runs.

Ferris, you’ll recall, was doing peritoneal dialysis at home in Kamloops when an infection reared its ugly head and brought all of that to a screeching halt. Her PD catheter was removed because of the infection, and she has been doing hemodialysis for the past couple of weeks.

However, Ferris has had some struggles with hemo, and her mother, Lindsey, reports that “we have a surgery date for a new PD cath and it’s a week sooner than we were originally told.”

That surgery now is scheduled for July 27. If all goes well, Lindsey says Ferris will be admitted on July 26 and “should only be in a couple of days before being outpatient again.

“It’s hard to imagine having to go through this surgery again . . . and the recovery, but at this point I just want to bring her home.”


If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


Mike





kidney

Zach still needs kidney, but he’s looking forward to swimming . . . Ferris coming off “rough week” . . . Five numbers of kidney health

Zach16Zach Tremblay, 17, hasn’t been tube-free since he was 11 years of age. That is expected to change on Tuesday.

Zach and his mother, Jana, are scheduled to travel to Kelowna today (Monday), where he is expected to have surgery to install a fistula that will provide easier access for his hemodialysis treatments.

Yes, Zach is waiting and hoping for a kidney transplant; he has been for a few years, as a matter of fact.

He and his family live in Robson, B.C., which is across the Columbia River from Castlegar. Zach had been doing peritoneal dialysis (PD) until it started to lose its effectiveness late last year, and he was transitioned to hemodialysis at B.C. Children’s Hospital in Vancouver earlier this year.

As for Tuesday’s surgery, Jana posted on Facebook that “we know his antibodies are high, so this is the right choice for him while we wait.

“They will also remove his PD catheter at the same time. Once he heals, and he can use it, they will remove his chest cath, and he will be tube-free for the first time since he was 11. That’s a big deal. It’s something he’s been looking forward to for a while, as he will have all the freedoms again of swimming, sports, etc.”

But he still will have to travel from Robson to Trail — it’s about a 30-minute drive — for his hemodialysis runs three or four times a week.

Until the phone call comes to tell him that a kidney has come available.


FerrisGlasses
Ferris Backmeyer showed off her new glasses a couple of weeks ago. (Photo: Lindsey Backmeyer/Facebook)

Meanwhile, the Backmeyers are preparing for another week in Vancouver as Ferris, 3, continues her transition from peritoneal dialysis to hemodialysis after having contracted an infection.

Lindsey and Pat’s other two daughters — Ksenia and Tavia — have joined them from their home in Kamloops, so the good news is that the entire family is together again.

Lindsey reports that Ferris, other than being excited to see her big sisters, had a “rough week overall.”

Lindsey posted on Facebook that “they are really pushing for a lower dry weight and it’s wreaking havoc on her tiny body. I’ve watched her ‘crash’ on dialysis twice this last week and they added an extra day of dialysis so (Saturday) was our fourth day in a row. Her BP now is low and I’m certain it’s the reason she’s having a hard time standing/walking.”

Among the things that hemodialysis does is remove fluid from the patient’s blood. Prior to a run, the dialysis machine is set to a dry weight goal, or the weight objective without excess water. Even when the excess water has been removed, the machine can keep trying to draw out what isn’t there, and that can result in a drop in blood pressure.

Lindsey also reported that Ferris is “eating a ton so we’ve had to adjust feeds to allow her to eat more things! We’ve seen potassium as high as 6.7 also this past week. It’s been scary at times for sure.”

Potassium higher than 6.0 in an adult is considered severe, so 6.7 in a three-year-old isn’t good at all.

“We dropped the amlodipine and the last two days have been marginally better,” Lindsey reported, referring to a drug used to help improve blood flow.

“First days she’s shown any interest in getting in the swing or getting up to play. I’m hopeful we get a better handle this week and start to see more of our sweet girl again.”

What’s it like being the mother of a three-year-old in this situation?

Well, you know that Lindsey has learned a lot about kidneys over the past two years. She also works in the area of critical care at Royal Inland Hospital in Kamloops, so knows something about that end of things, too, including a lot of the terminology. But that doesn’t necessarily make things any easier.

“It’s so hard walking the line of medical mama and healthcare professional,” she admitted in her most-recent posting. “Sometimes not being taken seriously and trying very hard not to be the psychotic protective parent and still advocate strongly for Ferris. It’s trying to put so much faith in people that don’t know her as well as I do. A whole new team essentially with a totally different kiddo. We both are learning her and I just hope that we can get her feeling better sooner than later! “

Through it all, the Backmeyers are working hard to make the best of the situation that has been forced upon them.

They are staying, for now, in Kitsilano, which gives them easy access to the Pacific Ocean.

They had thought this place had been “secured until the end of summer,” Lindsey wrote, “but as of (Sunday) morning we’ve been told otherwise . . . so on the hunt for a sweet place to stay for the month of August! Cost of living down here is insane, but with all the restrictions for families at (Ronald McDonald House) we are hopeful to find someplace private to rent so we can salvage some summer fun.”

In the meantime, Sunday was the family’s “first day off and together . . . should be fun!!”

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


Mike




He’s 17 . . . she’s 3 . . . their mothers are sharing experiences . . . now if they could only find kidney donors!

Lindsey Backmeyer lives in Kamloops; Jana Tremblay resides in Robson, B.C., across the Columbia River from Castlegar.

Each has a child in need of a kidney transplant.

Ferrissleep
Ferris wasn’t able to stay awake during a Sunday stroll with her father, Pat, along the oceanfront. (Photo: Lindsey Backmeyer/Facebook)

In Lindsey’s case, it’s her daughter, Ferris, who has kidney disease. Ferris, 3, has been on dialysis since she was 14 months old. She was doing peritoneal dialysis (PD) until a couple of weeks ago when an infection brought an end to that, at least for now, and forced a transition to hemodialysis. They now are in Vancouver and the transition is ongoing, although, if all goes well, a return to PD is in the future.

Jana’s son, Zach, is 17. His time with PD ended early this year when it began to lose its effectiveness. The two of them ended up in Vancouver for about three months as Zach was moved from PD to hemo. Back home, he now makes the half-hour trip to Trail in order to do hemo.

As things have turned out, Ferris’s transition, which admittedly is in its early days, has had some ups and downs. She is being treated as an out-patient, as she lives with her parents, Lindsey and Pat, in a suite in Kitsilano. They take her to B.C. Children’s Hospital four times a week for hemo.

On Monday, Lindsey wrote on Facebook about some of the the trials and tribulations . . .

“Well Saturday morning’s dialysis tuckered her out and I have a feeling we’ve found her ‘dry’ weight. She definitely had more energy Friday than she has the past couple days. Isn’t wanting to be on her feet for more than a few minutes at a time. Wanted to go to the park (Sunday) but only lasted a few minutes before wanting to go back to the ‘brown house.’

“She’s been extra ‘yelly’ which usually tells me she’s just not feeling that great. Still starving and eating constantly while she’s awake. Tolerating all her feeds plus extra.”

Then, Lindsey added:

“She had a crap sleep (Sunday) night ’cause she was itching so much. Her (phosphorous) has been low and urea is being managed much lower than what we saw on PD so I’m not too sure what’s up there. I took the Mepore dressings off her tummy as her skin has reacted badly to it before and she was pulling on them. Hopefully that helps ’cause the one on her chest is not going away . . . and it’s itchy, too.”

This is where things get interesting, because it seems that, despite the age difference, Ferris is experiencing some of the same things that Zach has gone through and continues to experience. That allows Jana to pass on some of her experiences to Lindsey.

Such as . . .

“The dressing change was traumatic for Zach and he’s 17. He said it’s tender for the first few weeks and itchy when they do it does feel a little better. But it’s very anxiety inducting to have them messing with it.”

With Ferris not yet able to clearly express those kinds of feelings, you can bet that Jana’s words have Lindsey at least having a sense of what her daughter is feeling.

“She has been so itchy the last 24 hours,” Lindsey wrote, “and the central line dressing is definitely one of the itchy spots . . .”

Jana responded: “Zach was, too, his first few weeks of hemo . . . maybe the body adjusting. He’s still nervous about it and not a fan, but definitely better than he was.”

Lindsey then added: “The dressing change was awful and I can’t help but think I could just do it myself while she’s asleep and it would have gone so much better. And the dressing would actually have stuck. She was so mad and sweaty, it didn’t stick good at all . . .”

It turns out Jana has seen that show before, too. As she wrote: “Yes, Zach sweats his off, too . . . we always end up taping him up before dressing-change day.”

At the end of the day, the two mothers have a lot in common. But there is one thing above all else . . .

Here’s how Lindsey closed her Monday musings:

“Ummm oh yeah and this girl could really use a kidney . . . just sayin’.”

So could Zach.


Zach16


If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca

News on Ferris from Backmeyer family . . . They’re excited, but also ‘nervous, sad and scared!’

Ferris
FERRIS BACKMEYER: She may be getting closer to a kidney transplant. (Photo: Lindsey Backmeyer/Facebook)

I’m sure lots of us — heck, all of us! — could use some good news today.

Right?

OK, here you go . . .

Lindsey Backmeyer, via Facebook, told the world on Friday that Ferris, her three-year-old daughter, “is officially active on the deceased donor list!”

Lindsey added: “While I have very few details on this, I know she’s top of the list for her blood type and no one thinks we will wait long.”

The Backmeyers, including older sisters Ksenia and Tavia, live in Kamloops; in fact, father Pat often puts on the big suit and plays the role of Digger, the Blazers’ mascot.

Ferris, who does peritoneal dialysis, was found shortly after birth to have Mainzer-Saldino syndrome that results in kidney disease, eye problems and skeletal abnormalities.

Every night since Ferris was 14 months old, she has been hooked up to a cycler so that a fluid exchange can be performed via peritoneal dialysis while she is in bed.

This happens every night . . . at home or on the road. Last night, tonight, tomorrow night . . . no exceptions.

The Backmeyers also have been searching for a living donor through the Living Kidney Donor Program at St. Paul’s Hospital in Vancouver.

In February, Lindsey told Jill Sperling of CFJC-TV:

“It is preferred to have a live donor kidney. Those kidneys just typically transplant better, they do better and they typically last longer. So, for Ferris, she’s going to need more than one kidney transplant in her lifetime.

“Also, for her we need a small kidney, so a small human, a small person is what they’re kind of looking for.”

Now, though, Ferris, whose blood is B-, now is on the deceased donor list. Unfortunately, of course, a successful outcome for Ferris means that someone else is going to have to die.

The Backmeyers are fully aware that is part of having to deal with organ transplantation.

As Lindsey wrote: “With this comes so many emotions! (Older sister) Tavia says she’s excited for Ferris but also nervous, sad and scared . . . me, too, my big girl . . . me, too!”

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca

——

Upon seeing the news about Ferris, Jana Tremblay wrote: “Yay Ferris! We are so excited for you.”

Jana’s son Zach, 17, also is waiting and hoping for a kidney transplant. He recently had to make the transition from peritoneal dialysis to hemodialysis because the former was losing its effectiveness.

Zach and Jana, who are from Robson, B.C., spent four months in Vancouver dealing with the transition at B.C. Children’s Hospital. They now are back home and Zach travels to Trail, B.C., four times a week in order to do hemodialysis at Kootenay Boundary Regional Hospital.

If you have any interest in being a living kidney donor, just check out the above information and make the call or send an email. Do it even if all you want is some more information.

A three-year-old girl’s family and a 17-year-old young man and his family are waiting and hoping . . .


What’s it like having a kidney transplant with a pandemic raging all around you? . . . Michael McSherry, 32, had known for 14 years that he was in need of a transplant, so when he got only a few hours notice, he was ready to get to the Pennsylvania hospital. He was in only empty hallways, anyone near him wore a mask and his wife wasn’t allowed in the hospital to see him. . . . Most importantly, the surgery was a success. . . . Priscilla Liguori of ABC27 News has more right here.




Zach’s odds have gotten better, but he still needs a donor. Interested?

Our annual Kidney Walk has been turned into a virtual event that will be held on June 7.

Had it gone ahead on schedule in Kamloops on Sept. 23, Dorothy would have taken part for a seventh straight year since her transplant. Instead, she is working at fund-raising for the virtual event. This is her way of giving back because she has been there and knows how many kidney patients this money helps support.

If you like, you are able to support Dorothy’s effort right here.


Zach16

 

Zach Tremblay’s transition to doing hemodialysis at Kootenay Boundary Regional Hospital in Trail, B.C., has been a success, his mother, Jana, reports.

The Tremblays live in Robson, B.C., which is located 33 km north of Trail.

Zach has four runs per week, each of them three to four hours in length.

“We drive him over, come home and go back later to get him . . . 16 trips back and forth a week,” Jana writes. “The Trail unit is full of lovely people and they have been exceptional in welcoming him/us and making it a less stressful transition.

“I am not allowed in with him because of the virus, so he has to go alone. He has his devices and snacks and off he goes.

“Not gonna lie . . . my eyes were full of tears and the lump in my throat was huge on Day 1, but has since shrunk to a pea size, with no tears now, every time we drop him off. He just makes us proud.”

Zach recently spent four months in Vancouver with Jana, as he went from peritoneal dialysis to hemo. And, of course, the search for a kidney for him continues.

On that front, Jana, reports . . .

“Now for the good news! Yes!! GOOD NEWS that we have been cradling and holding onto just a little while, because it just felt good for a change and we wanted to just enjoy it a while.

“A few weeks ago, Zach and I had a telehealth phone conference with his transplant doctor in Vancouver, Dr. Tom (Blydt-Hansen). Zach’s antibodies have come down. It doesn’t always happen, but it has and we will take it and feel blessed.

“This means the possibility of a match has become much bigger. Each time they come down, his donor pool widens — it’s really exciting biology stuff.”

What this means is that the odds of there being a match for him have improved considerably. Prior to the antibodies coming down, one person in 7,000 tested donors may have matched. Now it’s five in 1,000.

Jana adds: “They are now going to revisit anyone previously tested to see if they have become more compatible. They will also start testing new candidates, and continue with the paired exchange testings.

“If you’ve ever considered getting tested, please think about it now and help save our boy. His grad year is coming up and how wonderful would it be for this to be behind us and for him to just enjoy it.”


If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


Leonard Pitts, a columnist with the Tampa Bay Times, sat down at his keyboard the other day and tapped out a column that really resonated with me.

Here are the first three paragraphs:

“Someday, I’m going to die.

“This, I grudgingly accept. I have no idea how it’s going to happen. Maybe I will die of having a tree fall on me, of eating tainted shellfish, or of being struck by lightning. But this much I guarantee. I will not die of having wagered my life that TV carnival barkers, political halfwits and MAGA-hat-wearing geniuses know more than experts with R.N.s, M.D.s, and Ph.D.s after their names.

“In other words, I will not die of stupid.”

The complete column is right here.






Welcome back! Zach and his mother finally are home . . . Green Shirt Day moves online

ZachHome
Zach Tremblay and his mother, Jana, were riding high on Saturday as they headed home for the first time in almost three months. (Photo: Jana Tremblay/Facebook)

There was some good kidney news on Saturday as Zach Tremblay and his mother, Jana, headed home to Robson, B.C., after spending almost three months in Vancouver.

Zach, who turned 17 while they were living at Ronald McDonald House, was transitioned from peritoneal dialysis (PD) to hemodialysis while in Vancouver.

Zach had been doing PD at home in Robson, which is across the Columbia River from Castlegar. However, as 2019 wound down there were some issues and his medical team decided that PD was losing its efficiency. So they changed him over to hemo.

Unable to do hemo at home in Robson meant that he would have to travel to Trail and the Kootenay Boundary Regional Hospital there. However, the unit there wasn’t able to free up room until now. Zach will be travelling three times a week to Trail for hemo, with his first run on Tuesday.

Jana announced their departure via Facebook:

“So this is happening!! Homeward bound with Dad!! Trail is ready for Zach so we are home to stay for now. Thank you all for your love and support over the past few months.

“We appreciate each and everyone of you.”

Now . . . if only we can find a kidney for Zach.

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca





Message from a loving Mom: Photos of her son show why we need to stay home . . . #Flattenthecurve

Zach1

By now, if you are a regular here, you know Zach and Jana Tremblay’s story. . . . From Robson, B.C., Zach and his mother have been in Vancouver since early January while Zach was transitioned from peritoneal dialysis to hemodialysis. . . . They now are living at Ronald McDonald House while Zach does his dialysis runs at B.C. Children’s Hospital. . . . In time it is hoped two things will happen: They will be able to return home with Zach doing his dialysis runs at a hospital in Trail and Zach will undergo a kidney transplant.

Zach2In the meantime, here’s a message from Jana to accompany the two photos of Zach:

“This is what Intubation ICU Life Support looks like! Please listen and stay home.

“Have you ever seen your child Intubated?

“I have and trust me . . . you want to stay home.”

#STAYHOME #TeamZach #SocialDistancing

——

Rita Lowe Bowen is one of Jana’s many friends. She posted this note on Facebook this week, to accompany the above photo:

“We talk about our sweet friend, Zach, and how he needs to find his donor, but today Zach gave his mom, Jana, permission to share a different picture. This isn’t Zach’s face in a picture, smiling across the table from you. This is Zach in September, in critical care, where he has been twice in the last 6 months. When you need some motivation to stay home, think of Zach and Jana. Stay home. #Flattenthecurve.”

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


The Kamloops Kidney Support Group has cancelled its next get-togethers that were scheduled for April 8 and 11 at Chances (Barside Lounge and Grill), 1250 Halston Ave., due to the COVID-19 situation. . . . The KKSG meets on the second Wednesday (10 a.m.) and second Saturday (9 a.m.) of every month, always at the Barside Lounge and Grill.


The Kidney Foundation, BC & Yukon Branch annual general meeting will be held online on May 2. If you are a member of the foundation, you will be able to participate via Skype or conference call. . . . If you aren’t yet a member, you are able to update your membership prior to the meeting, but have to do it before April 24.



Happy birthday, Zach, and here’s to many more . . . Robson teen just keeps on smiling . . .

Cake

Zach Tremblay turned 17 on Wednesday.

Celebrate?

Well, he was in Vancouver. But, of course, a lot of places for celebrations in the big city are shut down or takeout only.

Oh, and he also had to spend part of his day doing dialysis.

Run
Zach Tremblay had to interrupt his birthday celebration on Wednesday in order to do a dialysis run. (Photo: Jana Tremblay/Facebook)

But there still was cake and goodies and lots of fun at Ronald McDonald House.

Zach is from Robson, B.C., which is across the Columbia River from Castlegar. He and his mother, Jana, have been in Vancouver since early in January. He spent some time in B.C. Children’s Hospital, where they transitioned him from peritoneal dialysis (PD) to hemodialysis.

Now that he’s on hemo, he won’t be able to do dialysis at home, something he did while he was doing PD.

The reason he and his mother haven’t been able to return home is that Zach will have to travel to the Kootenay Boundary Regional Hospital in Trail to do hemo, but . . .

“We were told Trail doesn’t accept patients who are not 17 years old plus a day,” Jana told Gord McIntyre of Postmedia in February. “Zach turns 17 on March 18.”

The dialysis unit in Trail has eight chairs and there apparently have been discussions about adding a ninth, which would ease some of the load there.

Of course, in a perfect world, Zach would have gotten word on his birthday that a donor had been found. As it is, we still wake up every day hoping that a match has been discovered.

In the meantime, Zach and Jana remain in Vancouver. But, as Jana points out, considering the situation in which we find ourselves these days that may not be a bad thing.

“We are thinking he’s safer here for now where he is still child priority,” she told me. “Going home means doing dialysis in a unit of older people mostly and it’s not the safest place for him to be. Here he gets good dialysis and is near a children’s hospital as this virus spreads.”

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca




Zach Tremblay: Negative thoughts equal negative outcomes . . . I try to be as positive as I can . . .

It was World Kidney Day on Thursday, which may have gotten lost in everything that was going on in this suddenly bizarro world in which we live.

But our friend Zach Tremblay was featured on the CTV News out of Vancouver, and it was a terrific piece.

If you aren’t aware, Zach is from Robson, B.C., which is just across the Columbia River from Castlegar. He and his mother, Jana, have been in Vancouver since the first week of January. While there, he was transitioned from peritoneal dialysis to hemodialysis.

Zach, soon to turn 17, has been fighting kidney disease for years and is need of a transplant.

“Become a donor,” he says in the CTV story, “Not just for me but there’s other people who need it just as much as I do.”

And then there was this:

”I’ll always have the mindset of negative thoughts equal negative outcomes . . . .so I try to be as positive as I can.”

Take a couple of minutes out of your day and watch the story on this remarkable young man. It is right here.

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca