Zach Tremblay has been discharged from B.C. Children’s Hospital in Vancouver, but isn’t yet able to return home to Robson, B.C.
Zach, 16, had been doing peritoneal dialysis until it recently became ineffective. So
during his most-recent stay at BCCH, he has been transitioning to hemodialysis.
His mother, Jana, has been keeping family and friends up to date by posting on Facebook. On Saturday, she wrote that they now are staying at Ronald McDonald House . . .
“Who’s a rock star . . . yup it’s our kid — we are officially discharged to RMH! He is doing hemo 4 times a week right now, 3.5 hours each session, and tolerating it beautifully. We will work up to 3 times a week, 4-hour sessions to be on the same schedule as Trail. Staying here for now makes that very convenient!
“PD is officially done and he will have that catheter removed probably one day next week . One step closer to home . . . The ride is a crazy one , so thanks for staying on it !! We love you all.”
When Zach and his mother return to Robson, his care will be in the hands of the staff at Trail’s Kootenay Boundary Regional Hospital while he waits for a kidney transplant. All that’s needed is a donor.
If you are interested in being a living kidney donor, more information is available here:
"I want to reiterate as many times as possible how important the donors are, how much they're heroes to us, and we always want to remember their stories and this gift that they're giving." #DonateLifehttps://t.co/Th7UGGm1Hn
This piece right here, from npr.org, is terrific. There is a 35-minute clip that you are able to listen to, or you can read a short story that features a few excerpts from that interview. . . . It is with Dr. Joshua Mezrich, who is an associate professor in the division of multi organ transplantation at the U of Wisconsin School of Medicine and Public Health in Madison. . . . He has been involved in hundreds of kidney, liver and pancreas transplants, and talks about his experiences and a whole lot more right here. . . . These transplant surgeons really are special people. I know that I really enjoyed the conversations I had with Dr. Brian Mayson at St. Paul’s Hospital in Vancouver, before and after Dorothy’s transplant more than six years ago. He always made you feel as though he had all the time in the world to converse with you, and that is something that we really appreciated.
On top of CORE's record-breaking 2019, this past year marked the ninth consecutive record-breaking year for deceased donation in the United States, with nearly 11,900 people providing the life-saving gift of organ donation last year. #DonateLifehttps://t.co/TVkQVd8UGj
If you are a sports fan, especially a football fan, you will remember Albert Haynesworth, a big, bad pass-rushing maniac who was the NFL’s defensive player of the year in 2008 while with the Tennessee Titans. . . .These days, Haynesworth does hemodialysis three times a week five hours at a time, starting at 6:15 a.m. . . . “He shares this cramped space with people from all backgrounds: white and black, young and old, successful and otherwise . . . diverse but depressingly the same, in that they each desperately need a kidney,” writes Greg Bishop of Sports Illustrated. “Haynesworth’s doctors have made that clear to him. Even this mountainous man, once as feared as any in football, finds himself worrying about dying young, about all the graduations and weddings and milestones he would miss.” . . . A friend is well along in the testing process, and Haynesworth just may get that kidney this year. . . . Bishop’s complete story — it’s a good one and it’s a long read — is right here. . . . (Thanks to long-time friend Jack Finarelli, aka The Sports Curmudgeon, for passing along the link to this story.)
My wife (Lacey Giesbrecht, #Regina Sk) is currently on the hunt for a #kidney donor in hopes to find one before needing dialysis.
It was in late November when Shawn Logan of Postmedia put together a story on how an organ gets from a donor to a recipient. It’s a good story and, if you haven’t seen it, it’s worth a look. . . . Logan opens the story: “A critical window opens for only a short period of time when a family makes the life-changing decision to allow a dying loved one to become an organ and tissue donor. The window can only open during two types of deaths, which allow for doctors to harvest vital organs and tissue that can be used to save or improve the lives of others. The first death is one in which the brain stops functioning (neurological death), but other vital functions remain operative. The second is cardio-circulatory death, in which life is not sustainable without a ventilator.” . . . The complete story is right here.
Meanwhile, Shraddha Chakradhar of statnews.com wrote an interesting piece this week on a major development in the area of heart transplants in the U.S. “A new method of ‘reanimating’ donor hearts from those who have died from cardiac failure is currently being tested in the U.S.,” Chakradhar reports, adding that this program “may soon ease” the burden on the more than 250,000 Americans who are at the end stages of heart failure. . . . “Last month, a team at Duke University was the first in the U.S. to perform the procedure in an adult as part of a multicenter clinical trial,” the story continues. “And just last week, Massachusetts General Hospital in Boston and the University of Wisconsin in Madison, which are also a part of the trial, reported their first such transplant.” . . . This enlightening and newsy story is right here.
IN THE NEWS! 📰📣 Kidney Foundation recognizes Campbell Riverite as a top fundraiser. The Kidney Foundation of Canada recognized a local man this week for raising 10’s of thousands of dollars for the foundation.https://t.co/anTkMQX7nt
My wife @WendyMcCann and I made the difficult decision to make a public appeal for a living liver donor for me today after 3yrs on a waiting list for a deceased donor. Can you you help me find a donor and save my life? https://t.co/IxWXqlES9G#greenshirtday
Allow me to throw a few words in the direction of politicians in the Yukon: Chronic Kidney Disease (CKD) isn’t going away. In fact, as time goes on medical advancements are going to mean more diagnoses, meaning CKD is only going to take a bigger and bigger bite out of your population, as it is everywhere else. . . . In the medical community, it is generally accepted that one in 10 Canadians is living with kidney disease or is at risk, and most of those people are unaware of their situation. . . . I would suggest that Yukon isn’t a statistical anomaly, so I also would suggest that the fact there isn’t a community dialysis unit in your area of our country is something of an embarrassing tragedy. . . .
If you are a regular here, you will be aware that Terry Coventry, 74, died in Whitehorse General Hospital on Jan. 3. He had kidney disease and was doing hemodialysis in Vancouver until, plagued by loneliness, he chose to return home even though he knew he was facing certain death.
He invited media to visit with him in hospital in Whitehorse on Dec. 10, telling them: “I’m not afraid (of dying). I’m just kind of pissed off that there’s nothing they can do for me . . . I sure hope it’ll help the next person, you know? For whatever reason, we should have a dialysis here at the hospital. We don’t.”
Jackie Hong of Yukon News has reported that Coventry’s sister, Kelly, is picking up the torch that her brother had been carrying.
“Terry has gone peacefully and the way that he wanted to, and that gives me a great deal of joy,” Kelly told Hong earlier this week. “It also gives me a great deal of joy knowing we were able to kind of tick all of the boxes that he wanted to get accomplished before his passing, and the only thing left is getting a hemodialysis machine here in the Yukon. . . .
“The success is going to have a hemodialysis machine here in the Yukon so that people don’t have to experience what he experienced and when that happens, and I say when, not if . . .then Terry’s last wish will be completed.
“Hopefully things will move quickly once everything is settled and I can sort of get the push on again.”
Here’s hoping that there are politicians in the north country who are paying attention and prepared to make a difference.
Zach Tremblay and his mother, Jana, finally got to Vancouver on Monday. You will recall that they are from Robson, B.C., and that Zach, 16, is in need of a kidney transplant. Late last week, he began having some issues and the decision was made to get him to
Vancouver so his medical team could take a look.
Just to complete the story that began then. . . .
Unable to fly out of Trail, B.C., due to inclement weather in various locations, Zach and Jana ended up making the trip to Kelowna via ground ambulance. Jana posted late Sunday night/early Monday morning:
“Kelowna — safe and sound — BUT, and that’s a mighty big butt, there’s nothing nice to be said about travelling facing backwards and not being able to see where we were going. 🤢
“Settled in for the night , and onward to Van tomorrow
“We truly love you all.”
On Monday morning, she posted:
“We are still in Kelowna. We woke to a huge snow storm and I don’t think planes are moving right now. His BP was pretty stable overnight and he’s resting well . . . no idea when we will get to Van but eventually we will.
“Thanks for staying on this crazy ride.
“Love to you all.”
Later Monday, she wrote:
“We have FINALLY arrived in Van — no real updates — he’s getting the care he needs and we are where we need to be for now.
“We thank you all for the love and support and for just loving our boy and our family.
“#TeamZach is one of a kind of and we are blessed to have each and every one of you a part of it.”
On Thursday night, Jana told me that Zach’s medical team has decided that peritoneal dialysis “isn’t working well for him anymore and he will be having a hemo catheter placed” on Friday.
Once Zach’s situation stabilizes, he and Jana will return home, after which his care will be placed in the hands of the staff at a hospital in Trail, B.C., which is about 30 km south of Robson.
If you are interested in being a living kidney donor, perhaps to help Zach or anyone else in need of a kidney, more information is available here:
“Skully White is known around Abbotsford as a charitable guy,” wrote Vikki Hopes of the Abbotsford News. . . . Hopes then went on to chronicle many of White’s contributions to the community and, believe me, there are a lot of them. . . . Now, though, Hopes is taking charity to a whole new level. . . . “He’s donating a kidney to one of his customers, Tim Hiscock,” Hopes wrote. . . . Hopes’ story of how this all came about is right here.
IN THE NEWS! 📰📣Seaway Valley Major AA Rapids taking aim at Good Deeds Cup. The cup challenge each year is about making the community a better place, and the Rapids have chosen to raise awareness about live kidney donation.https://t.co/J7LL66WAFM
I urge everyone to consider registering to be a deceased organ donor at https://t.co/t3CPj1302u and to learn more about the Humboldt Broncos and Logan Boulet. To give others the opportunity to have a second chance at life once you're gone.
Gord McIntyre of Postmedia chatted with Jana Tremblay the other day and the result — a story on Jana’s son Zach — was in Vancouver’s two daily papers on Friday. . . . The hunt is on for a kidney for Zach, 16, who spends 14 hours a day undergoing dialysis. The Tremblays live in Robson, B.C., just across the Columbia River from Castlegar. . . . McIntyre’s story is right here.
I first wrote about Zach in October. That piece is right here.
NOTE: Just as I posted this on Saturday morning, Jana Tremblay was putting a note on Facebook . . .
“Because life just likes to keep us on our toes, we are currently sitting in Trail Hospital, awaiting air transport to Vancouver. Zach has very high BP , and needs some TLC from his team.
And just to throw an extra kink into things , weather in Van has our flight on hold … that’s a switch 😜
Keep good thoughts for our boy.”
We’re thinking about you, Zach.
Terry Coventry lived in Whitehorse for 61 years; he died of kidney failure in Whitehorse on Friday at the age of 74. . . . Coventry died four weeks after a final dialysis treatment. . . . He had ended up at St. Paul’s Hospital in Vancouver in July and spent four months there. With dialysis treatment unavailable in Whitehorse and not wanting to relocate to Vancouver, Coventry returned to the Yukon city to die.
On Dec. 10, Coventry called reporters to his bedside in Whitehorse General Hospital. “Maybe my death, and my complaint here, will trigger something in the government so the next guy coming along can be here and won’t be shipped down south,” Coventry told reporters. “I’m going to die. That’s it . . . I’m not afraid, I’m just kind of pissed off.”
Gabrielle Pivonka of the Whitehorse Star was among the reporters at Coventry’s bedside on Dec. 10. Her story, which is right here, helps to explain why hemo-dialysis isn’t available in Whitehorse.
Those involved with The Kidney Project feel that they are moving ever closer to eliminating the need for dialysis. . . . The team reported in November that U of California — San Francisco “scientists have successfully implanted a prototype kidney bioreactor containing functional human kidney cells into pigs without significant safety concerns. The device, which is about the size of a deck of cards, did not trigger an immune reaction or cause blood clots in the animals, an important milestone on the road to future human trials.” . . . Team member Shuvo Roy, PhD, said in a news release: “This is the first demonstration that kidney cells can be implanted successfully in a large animal without immunosuppression and remain healthy enough to perform their function. This is a key milestone for us. . . . Based on these results, we can now focus on scaling up the bioreactor and combining it with the blood filtration component of the artificial kidney.” . . . The complete news release is right here.
IN THE NEWS! 📰📣 Calgary woman calls organ donation her ‘Christmas miracle’. "I became extremely anemic. I was extremely tired and fatigued all the time. I couldn't go a day without napping," McLarty said. "Dialysis takes a lot out of you."https://t.co/WpM1USK9zb
André Picard, a healthy reporter and columnist with The Globe and Mail, had an interesting story on Saturday. The print story was headlined ‘Giving life, and a bit of liver, to a stranger,’ while online it carried this headline: ‘Meet the Chopped Livers — altruistic Canadians who have donated a part of their livers to strangers to save lives’ . . . The story mostly deals with people who have chosen to donate a piece of their liver to those in need. . . .
Picard’s story included this:
“Given the dire shortage of organs for transplant — there are 3,150 Canadians waiting for a kidney and 527 waiting for a liver — public appeals are on the rise.
“That makes many clinicians and ethicists uncomfortable. They worry that desperately needed organs will go to those with compelling stories rather than those most in need, as illustrated by the case of Eugene Melnyk, the owner of the Ottawa Senators, who received a liver transplant in 2015 after a public appeal.
“More than 500 people offered to donate a part of their liver to Mr. Melnyk, and 20 of them actually continued with the process to become living donors.”
After the response to Melnyk’s appeal in 2015 and the ensuing successful transplant, I sometimes wondered how many of the potential donors had gone ahead even after not being selected to help him. Now I know.
IN THE NEWS! 📰📣 (Part 1 of 3) Cristina Howorun’s journey of getting a new kidney through a living donor. In part one of her series, she explains what happened before her transplant, and why they didn’t remove her non-functioning kidney.https://t.co/X76IXht8rl
IN THE NEWS! 📰📣 (Part 2 of 3) Cristina Howorun on what life’s like after a kidney transplant. She shares the life-changing journey from dialysis treatment, to adjusting to a new lifestyle, and even the scars she has learned to embrace.https://t.co/UsKjBHEMOm
IN THE NEWS! 📰📣 (Part 3 of 3) The decision to be a living donor. In the final installment of Cristina’s series, she introduces us to the woman who gave her a kidney – and a new lease on life.https://t.co/AksyzFYwMJ
ICYMI: “He is someone else’s answered prayers. Today, families in some waiting rooms just like us here, they’re going to get great news. God is still in business, and somebody’s prayers, many people’s prayers were answered. And it’s because of him.” https://t.co/Y2ypGR8O74
If you haven’t heard Chris Rea’s Driving Home for Christmas, here it is and it’s a good one . . .
We are closing in on Christmas, so why not a story about a “Christmas kidney,” a story that really is worth a listen?
Jason Armstrong of West Vancouver and his family are more than ready for Monday. Yes, he is going to get a new kidney on Monday, two days before Christmas Day. . . . Armstrong, 48, and his wife have four children. . . . He has had health issues for seven years and really has quite a story that includes a lot more than kidney failure. . . . One potential donor who was a match found out during testing that she wouldn’t be able to give him a kidney. In the end, another acquaintance is giving him what she calls a “Christmas kidney.” . . . Armstrong equates it to winning a lottery. “She’s actually going to save my life. . . . Thank you isn’t enough,” he told Claire Allen of 980 CKNW, a Vancouver radio station. . . . This is a terrific listen. So take 10 minutes out of your life and check it out right here.
If you've got 10 mins, listen to my piece about a West Vancouver father who received a kidney from an unexpected donor.
If you haven’t already, do all the people around you a favour and get yourself a flu shot for Christmas.
Here’s Dr. Richard Webby, a member of the Infectious Diseases Department at St. Jude Children’s Research Hospital and the World Health Organization’s Vaccine Composition Team:
“With family gatherings and travel during the holiday season, the influenza virus is spreading across the country and (people) need to take precautions now to protect themselves and their families.
“It is still not too late to get vaccinated and for your body to build up immunity this flu season.
“The bottom line is the flu shot is still the most valuable and life-saving public health tool in preventing and spreading the flu. In fact, this year’s flu vaccine has been reformulated and updated based on last year’s shot.”
Some tips for preventing the flu . . . Get the flu shot . . . Wash your hands regularly . . . Cover your nose and mouth when you sneeze or cough . . . Stay home and rest if you are ill . . . Wash your hands . . . Wash your hands . . . Wash your hands.
If you pay attention to anything, please make it this from Dr. Webby:
“Getting the flu vaccine isn’t just about protecting your health, it’s also about protecting those around you who are vulnerable like the elderly, children, and those with serious health issues. The more people who get the flu shot, the less chance the virus can spread while protecting more people.”
There are many people walking around out there who look healthy but due to health circumstances have compromised immune systems. These are just some of the people we need to protect by getting flu shots.
Diet is one of the things that often comes up in conversation when the Kamloops Kidney Support Group gathers. Because Dorothy has experienced pre-dialysis, peritoneal dialysis and a kidney transplant, she often is asked about any dietary restrictions she may have encountered along the way.
These days, with the transplant having occurred more than six years ago, her main concern is that any meat she eats be completely cooked. Yes, we regularly use a meat thermometer. She also is sure to heat any deli meet that she might eat because of the danger of listeria.
Anyway . . . with diet in mind, something that is front and centre at this time of year, here’s a note from June Martin of the Kidney Foundation of Canada, from her Dietitian’s Blog:
“Food is an important part of any holiday or celebration. As I was thinking about what to write about for my Christmas blog post, I was trying to think of how to articulate why food is so important to the holidays and to almost any celebration. For me, Christmas Eve is the smell of tourtiere (and my brother complaining about having to eat it) and Christmas day could never be the same without turkey and stuffing. And regardless of what holiday you celebrate, food plays a huge role. Preparing food and eating together is a part of almost every culture’s rituals for celebration.
“Unfortunately having kidney disease can make celebrating the holidays much more difficult! Trying to maintain family and religious traditions while balancing the sodium, potassium, phosphorus, protein and fluid in your diet takes planning and skill.”
There’s a whole lot more right here, including “a few noteworthy items to watch out for over the holidays.”
FROM KIDNEY COMMUNITY KITCHEN🥪“Preparing food and eating together is a part of almost every culture’s rituals for celebration. Unfortunately having kidney disease can make celebrating the holidays much more difficult!” Read this dietitian’s blog for tips: https://t.co/lKnq9DVoHvpic.twitter.com/0xGn4CoNzF
WANT TO PARTICIPATE? 💻 BC Renal is seeking patients and family members to participate in the Evaluation Project Advisory Group. For more information and to RSVP (before December 31), visit: https://t.co/DPpoxkdf6Ohttps://t.co/KZYyMTwOLj
"I’m so thankful that I was in a position to donate a kidney. What an incredible feeling it was being able to help save someone’s life. I would absolutely do it again… if I could. It's been four years and I feel fantastic." – Freddie Marsh, Living donor #FreddieGaveLifepic.twitter.com/qx7HopyIye