Lindsey Backmeyer: We got the callllll!!! . . . Ferris, 4, being prepped for Saturday morning kidney transplant

Ferris1
Ferris Backmeyer, 4, is scheduled to have a kidney transplant on Saturday morning in Vancouver. (Photo: Lindsey Backmeyer/Facebook)

If all goes according to plan, Ferris Backmeyer, 4, of Kamloops, will receive a new kidney on Saturday morning in Vancouver.

Her mother, Lindsey, posted the good news on Facebook on Friday morning:

“Oh my goodness I don’t have words. I knew this would happen . . . or was hoping so badly that this would happen!! We got the callllll!!! Mom had already left about 30 minutes before with a car loaded up with our stuff! She’s coming back!!! Ferris will be admitted this afternoon with plans to be transplanted early tomorrow morning. Kidney transplant . . . take 2!!!”

The Backmeyers have been in Vancouver since late December after getting a phone call advising them that a kidney had been found for Ferris. However, after getting settled in Vancouver and preparing for the big day, the surgery was called off.

As Lindsey put it at the time, the medical team “came in about an hour ago now and told us that the retrieval surgeon contacted him with not-so-great news about the kidney.”

She added: “The surgeon said he always asks himself if he would put the kidney in his own daughter and he said absolutely not to this one. That’s good enough for me.”

That brings us to the present. . . .

Ferris was diagnosed with Mainzer-Saldino syndrome shortly after birth. Kidney failure quickly followed, meaning she has been on dialysis — either peritoneal (PD) or hemo — for pretty much all of her short life.

Ferris had been having issues with doing PD in December when the call came about a potential transplant. Because of those issues, she had been scheduled to return to B.C. Children’s Hospital in January to be transitioned to hemo.

That early January transplant didn’t happen, but Ferris stayed in Vancouver and made the move to hemo. It was just last week when she was transitioned back to PD. And, seemingly without a new kidney in sight, the family — Ferris’s older sisters, Tavia, 9, and Ksenia, 7, also have been in Vancouver — was readying to return to their Kamloops home. Ferris’s father, Pat, is attending school in Kamloops, so has been putting on the miles as he spends time in both cities.

And, as you will have noted by Lindsey’s post, her mother, Leslie, was already en route to Kamloops when the call came on Friday. Grandma turned around and headed back, of course.

And now the excitement will be palpable as everyone awaits Saturday morning.









If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca

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Vancouver General Hospital Living Donor Program – Kidney 

Gordon and Leslie Diamond Health Care Centre

Level 5, 2775 Laurel Street

Vancouver, BC V5Z 1M9

604-875-5182 or 1-855-875-5182

kidneydonornurse@vch.ca

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Or, for more information, visit right here.


Do good, feel good! Register to be an organ donor and get that warm fuzzy feeling. 1 organ donor can save up to 8 lives. Taketwominutes.ca #TakeTwoMinutes 

A thank you from Brad Hornung . . . WHL’s five B.C. teams to hub up in Kamloops, Kelowna . . . BCHL’s 17 teams still waiting as self-imposed deadline approaches

There is a book out there that includes a chapter on Brad Hornung and it’s well worth a read — the entire book, I mean, not just the chapter on Hornung.

Written by Roy MacGregor, one of Canada’s best writers, it is titled The Home Team: Fathers, Sons & Hockey, and was published in 1995. It was shortlisted for the Governor General’s Award.

The book, which definitely rates as one of the best ‘hockey’ books out there, is available in hard cover, paperback and ebook. If you haven’t read it and choose to, you won’t be disappointed.


Players and staff members from the WHL’s five B.C. Division teams will begin WHL2quarantining on Saturday, then report to their teams on March 13 as they begin preparations for a return to play on March 26 with games in two cities.

The Prince George Cougars, Vancouver Giants and the Blazers will be in Kamloops, with the Victoria Royals and the Rockets in Kelowna.

In Kamloops, the Cougars and Giants are expected to stay in a hotel owned by Tom Gaglardi, the owner of the NHL’s Dallas Stars who is the Blazers’ majority owner. The hotel is kitty-corner from the Sandman Centre in Kamloops. The Blazers players will stay with their billets.

In Kelowna, Victoria is expected to stay in a hotel owned by the GSL Group that was founded by Graham Lee, who owns the Royals. The Rockets will be with billets.

A schedule that has yet to be released will have each of the five teams play 24 games without fans, likely in about seven weeks. Games will be played only in Kamloops and Kelowna, although teams will travel between cities for games. There won’t be any over-night stays and there won’t be any stops while in transit.

Players and staff will undergo testing when they report to their teams in Kamloops and Kelowna, and then will go into quarantine again. Each participant will have to pass another test before being allowed to begin team activities.

Players and staff will be tested on a weekly basis, with a positive test resulting in a team having to shut down for at least 14 days.

From a WHL news release:

“Enhanced screening for all WHL players, team staff and officials will also take place on a daily basis, including regular temperature screenings as well as symptom monitoring through the WHL Athlete RMS Mobile Application. Masks must be worn by all WHL players at all times with the exception of when participating on ice for games and practices. WHL coaches will be required to wear masks at all times, including while conducting practices and while behind the benches during games.”

The B.C. teams will be the last of the WHL’s 22 clubs to begin play in what is strictly a developmental season. The five Alberta teams began play on Feb. 26. Seven teams — five from Saskatchewan and two from Manitoba — have gathered in Regina and are to open play on March 12. The five U.S. Division teams will open on March 19.

The WHL news release is right here.


While the WHL’s five B.C.-based teams have gotten the OK for games, the BCHLBCHL’s 17 teams keep on playing the waiting game.

Dr. Bonnie Henry, the provincial health officer, said Tuesday that her staff continues to work with the BCHL on its proposed return-to-play protocol.

Keep in mind that the WHL’s B.C. Division teams are going to play in two cities — Kamloops and Kelowna — in the same health authority, while the BCHL’s proposal apparently calls for cohorts set up in five separate communities involving multiple health authorities.

“Right now, they are continuing to work with the BCHL and with our regional teams because the (BCHL’s) plan is dispersed around the province in a way that is slightly different than the Western Hockey League, for example,” Dr. Henry said. “(It) is still in the consultation process and there have been a number of concerns identified — I’ll be blunt about that — that need to be addressed before that can happen safely.”

In a letter to government and health officials on Friday, Chris Hebb, the BCHL commissioner, wrote that if a decision allowing a return to play wasn’t received by Wednesday, which would be today, the league’s owners would be voting Thursday on a motion to cancel the season.

Tick . . . tick . . . tick!

Brian Wiebe of BCHLNetwork has more right here.

——

What Garry Valk is doing in trying to influence a decision by government and health officials regarding a return to play for the BCHL’s 17 teams is admirable. It really is. He started a petition that has accrued something around 3,000 signatures, and he has kept the fires burning on social media.

But tweets like the one above don’t do anything to help the cause. “All the other Junior A teams in Canada” aren’t playing games, he writes.

Well, the 12-team Manitoba Junior Hockey League cancelled its season on Feb. 12. The 12-team Saskatchewan Junior Hockey League has been paused since Nov. 21. The seven-team Superior International Junior Hockey League cancelled its season on Monday. The Ontario Junior Hockey League, with 21 teams in Ontario and one in Buffalo that opted out of this season, isn’t playing, in part because it has to deal with 10 regional health units. I could go on, but you get the point.

If you are going to be the face of a cause like this, you have to protect your credibility with the people you are trying to influence, which means you also have to do the research.



CBC News: Texas to drop requirement for people to wear masks. The state is averaging about 7,700 new COVID-19 cases a day; 6 weeks ago it was over 20,000. Texas has a population of 29M, about twice the size of Ontario, which is averaging roughly 1,100 cases a day.


The New York Times — Mississippi joined Texas on Tuesday in lifting state mask mandates, despite federal health officials warning governors not to ease restrictions yet, because national progress in reducing coronavirus cases appears to have stalled in the last week.


Mob


The Toronto Raptors and visiting Detroit Pistons are scheduled to play an NBA game in Tampa, Fla., tonight. The game was postponed from Tuesday because the Raptors have run into virus-related issues. If tonight’s game goes ahead, Toronto will be without three starters — OG Anunoby, Pascal Siakam and Fred VanVleet — along with Patrick McCaw and Malachi Flynn, who come off the bench. Head coach Nick Nurse and a number of his staff also are expected to be missing tonight. . . . Donta Hall and Jalen Harris have joined the Raptors from their G League affiliate. . . . The NBA now has postponed 31 games this season because at least one of the teams didn’t have at least eight healthy players.



If you’re a country music fan, you should know that the CMA Fest has been cancelled for a second straight year. It’s now scheduled to run in 2022, from June 9-12, in Nashville.


New York Post — New Yorkers would have to flash COVID-19 passport to enter venues under new program. . . .  Gov. Andrew Cuomo announced Tuesday the rolling out of a new pilot program where New Yorkers would have to flash a sort of COVID-19 passport in order to enter sports arenas, theaters and other businesses as the state continues reopening efforts. . . . The pass was tested at Tuesday night’s New York Rangers game at Madison Square Garden.


Worst



If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca

——

Vancouver General Hospital Living Donor Program – Kidney 

Gordon and Leslie Diamond Health Care Centre

Level 5, 2775 Laurel Street

Vancouver, BC V5Z 1M9

604-875-5182 or 1-855-875-5182

kidneydonornurse@vch.ca

——

Or, for more information, visit right here.


Boss

Ferris and Lindsey Backmeyer: A mother’s love is everything when her child continues to fight . . .

If you’re a regular here, you will know that we have been paying particular attention to Ferris Backmeyer and her family, who are from Kamloops.

That’s because her mother, Lindsey, has been keeping friends and family (and us) updated on Ferris via Facebook.

Lindsey has poured out a mother’s heart in her posts, refusing to hold anything back. She has written with angst and anger and pain and, yes, even some humour as Ferris, at just three years of age, continues to travel a road that hopefully will end with a kidney transplant.

The outpouring of emotions is understandable as Lindsey helps guide husband Pat and Ferris’s two sisters — Tavia and Ksenia — through all of this.

The older girls — the “bigs” as Lindsey refers to them — were in Vancouver for three weeks before returning home with Lindsey’s mother after the weekend.

Lindsey and Pat now are completely focused on getting Ferris through this rough patch, helping her get well enough to go back on the transplant list, and back home. But the last bit hasn’t been an easy stretch.

For example, here’s a bit from a Facebook post by Lindsey on July 20 after doctors implanted a central dialysis line:

“Ferris had complications intraoperatively. The line was technically difficult because of her anatomy and while they were placing it they irritated her heart. Her higher potassium levels lower her threshold for things like that and she went into a PEA arrest. She had roughly 3 minutes of CPR and 1 dose of epinephrine when they got her pulse back. She was hypoxemic and difficult to ventilate for a bit afterwards. They were confident that it was noticed very quickly and that she responded fairly quickly. Thankfully they were able to extubate her and pull her art line before going to the dialysis unit.”

One day later, Lindsey wrote:

IV
Despite all that she has been through, Ferris Backmeyer, 3, can still find a smile for the camera. (Photo: Lindsey Backmeyer/Facebook)

“As for today . . . she’s super low key but perked up by evening and wanted to go to the beach and build sand castles . . . so that’s what we did:) she spent about 5 minutes total on her feet today but that’s okay!! Lots of couch time. She’s sore and much happier with Tylenol on board. I’d be lying if I am not super anxious/protective over her right now. She has little pen crosses on her pulses and blood in her hair that I rinsed off into a paper towel. A bath was not a today thing. She has no idea what a big day yesterday was, and I don’t think I’ll ever forget it.”

Last Thursday, Ferris had more surgery as a peritoneal dialysis (PD) catheter was implanted. She had been doing PD at home when fungal peritonitis brought it all crashing down. That resulted in this most-recent trek to B.C. Children’s Hospital and all that has followed.

After Thursday was over, Lindsey, her emotions on her sleeve by now, wrote: “It was a super hard, inpatient kinda day.”

A day later, there were more complications, this time with cell counts.

“The question of when she could get listed again (for a transplant) comes up and at this point we just don’t know,” Lindsey wrote. “I’d be lying if I said I wasn’t shattered by today’s news.

“My heart is breaking for Ferris. She normally takes all the medical stuff in stride and right now she’s really struggling. I call it a trauma cry because it’s one I have hardly ever seen before and she looks like she’s being tortured. With things she used to handle like a champ. As she gets older navigating her mental health is so much more challenging and so ridiculously important!”

The next day, doctors had to put in an IV line, which brought this response from Lindsey:

“Oh man . . . after posting how she’s not doing so well coping . . first time ever IV placement without tears! This is her 5th IV this go-round and she’s not left with a lot of sites. She was so ridiculously cute and compliant for the nurse and she was friggin amazing with Ferris! Decent end to a not so awesome day!!”

And now the Backmeyers are playing something of a waiting game. As Lindsey wrote on Monday:

Couch
Ferris likes the couch a whole lot more than a hospital bed. (Photo: Lindsey Backmeyer/Facebook)

“So far the cultures haven’t grown anything! They have stopped the antibiotics. Gonna repeat a sample on Wednesday and if cell counts have trended down will likely drop the antifungals (she’s been on fluconazole since we got down here a month ago). Then it will be a bit of a wait-and-see. I think they will go ahead and start using the catheter as planned. Best case scenario . . . home in a couple of weeks!! Trying so desperately to remain optimistic!!

“Ferris wants nothing to do with a hospital bed after she gets out of it in the morning. All bad things start with that bed . . . I can’t really blame her! She’s passed out on the couch the last 3 nights. Hoping for a super uneventful week!!”

BTW, Lindsey and Pat celebrated their 16th anniversary last week.

“Happy Anniversary to the most incredible momma bear,” Pat wrote, above a photo of a snarling grizzly bear. On the photo, it read: “Fate whispers to the warrior, ‘You cannot withstand the storm.’ And the mama bear whispers back, ‘I am the storm.’ ”

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


Here’s the deal on the above tweet. . . . It’s the story of Carrie, who has had a heart transplant and now has met the family of her donor. . . . From the Provincial Health Services Authority: “Filmed in February 2020, Carrie finally got to hug the family of Darcy, her organ donor. After 17 years of writing letters to each other, she was met with open arms by his mother Marie and brother Daryl in a first ever face-to-face meeting.” . . . The video is right here.





Sunday a day of freedom for Ferris . . . Zach needs a kidney, too . . . Want to help? Please contact Living Kidney Donor Program

The Backmeyers have found some freedom in Vancouver with Ferris being treated as an outpatient, at least for now.

Ferris, 3, slept on a couch on Friday night, a rarity for a child who has been on dialysis since she was 14 months old. Today (Sunday), she won’t have to dialyze and I really would love to know what will be going through her mind as she spends one entire day without having to hook up to a cycler for peritoneal dialysis (PD) or a hemodialysis machine.

FerrisSwing
Ferris spent some time doing kid things the other day in Vancouver. (Photo: Lindsey Backmeyer/Facebook)

The Backmeyers are from Kamloops. Ferris is in need of a kidney transplant. She had been doing PD at home, but she got hit with an infection, so Mom and Dad (Lindsey and Pat) had to take her to B.C. Children’s Hospital a week ago. There, doctors removed her PD catheter and transitioned her to hemodialysis, at least for the short term.

Lindsey informed Facebook followers early Saturday that they will take Ferris to BCCH on Monday, Wednesday, Friday and Saturday for hemo, with each run taking about three hours. Including pre- and post-, it takes about 3.5 hours. That is quite a change for a little girl who is used to being hooked up to a cycler for about 12 hours a night.

“Still gives us a decent amount of time out,” Lindsey wrote.

She added that they spent some time out Friday evening “and I think it’s safe to say we are all more comfy here! Now if it would only stop raining!!!!”

They almost certainly will be in Vancouver for another few weeks.

“The most current plan is to admit her during the first week in August and reinsert her PD catheter,” Lindsey wrote. “If it goes well we could be home mid-August. While it’s not a set-in-stone plan . . . it’s the one we have for now!”

On Thursday, Lindsey had written that “Ferris is slowly feeling better each day. She hasn’t had any Tylenol since noon (Wednesday) and has only cried a couple times in pain. . . .

“She’s still really low on physical energy but she continues to eat! We are back to full feeds and she’s still eating a ton. She’s eaten half a chicken in three days. . . . She’s constantly yelling for different foods . . .”

This will be a big week for Ferris as her big sisters are scheduled to arrive on Wednesday.

According to Lindsey: “Ferris asks about them a lot. They worry about Ferris and us when we are down here. It’ll be better for everyone if we are together. We had already discussed the possibility of spending the summer here if a transplant were to happen. Kinda preparing them that all our summer camping plans might be derailed. So this isn’t totally unexpected.

“The realization that we are here for awhile has been a huge pill to swallow. In fact I haven’t really yet. I’m still looking at how big it is!! For now, we plan for next week and hope that Ferris gets a bit stronger each day!”

——

Meanwhile, Zach Tremblay, now 17, continues to trek from his home in Robson, B.C., to Trail to do dialysis as he waits and hopes for a kidney transplant.

You bet that Zach can relate to what Ferris is going through, because he was transitioned from PD to hemo early this year.

Zach16

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If you are at all interested in being a living kidney donor, contact the Living Kidney Donor Program at St. Paul’s Hospital in Vancouver. You don’t have to make an immediate commitment, but the folks there are able to prove you with more information and answer any questions you may have.

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


There are a lot of tests involved in finding out whether a potential kidney donor and recipient are a match. Three of those are blood tests — blood typing, tissue typing and cross-matching. . . . There’s a lot more on that right here.





Zach’s odds have gotten better, but he still needs a donor. Interested?

Our annual Kidney Walk has been turned into a virtual event that will be held on June 7.

Had it gone ahead on schedule in Kamloops on Sept. 23, Dorothy would have taken part for a seventh straight year since her transplant. Instead, she is working at fund-raising for the virtual event. This is her way of giving back because she has been there and knows how many kidney patients this money helps support.

If you like, you are able to support Dorothy’s effort right here.


Zach16

 

Zach Tremblay’s transition to doing hemodialysis at Kootenay Boundary Regional Hospital in Trail, B.C., has been a success, his mother, Jana, reports.

The Tremblays live in Robson, B.C., which is located 33 km north of Trail.

Zach has four runs per week, each of them three to four hours in length.

“We drive him over, come home and go back later to get him . . . 16 trips back and forth a week,” Jana writes. “The Trail unit is full of lovely people and they have been exceptional in welcoming him/us and making it a less stressful transition.

“I am not allowed in with him because of the virus, so he has to go alone. He has his devices and snacks and off he goes.

“Not gonna lie . . . my eyes were full of tears and the lump in my throat was huge on Day 1, but has since shrunk to a pea size, with no tears now, every time we drop him off. He just makes us proud.”

Zach recently spent four months in Vancouver with Jana, as he went from peritoneal dialysis to hemo. And, of course, the search for a kidney for him continues.

On that front, Jana, reports . . .

“Now for the good news! Yes!! GOOD NEWS that we have been cradling and holding onto just a little while, because it just felt good for a change and we wanted to just enjoy it a while.

“A few weeks ago, Zach and I had a telehealth phone conference with his transplant doctor in Vancouver, Dr. Tom (Blydt-Hansen). Zach’s antibodies have come down. It doesn’t always happen, but it has and we will take it and feel blessed.

“This means the possibility of a match has become much bigger. Each time they come down, his donor pool widens — it’s really exciting biology stuff.”

What this means is that the odds of there being a match for him have improved considerably. Prior to the antibodies coming down, one person in 7,000 tested donors may have matched. Now it’s five in 1,000.

Jana adds: “They are now going to revisit anyone previously tested to see if they have become more compatible. They will also start testing new candidates, and continue with the paired exchange testings.

“If you’ve ever considered getting tested, please think about it now and help save our boy. His grad year is coming up and how wonderful would it be for this to be behind us and for him to just enjoy it.”


If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


Leonard Pitts, a columnist with the Tampa Bay Times, sat down at his keyboard the other day and tapped out a column that really resonated with me.

Here are the first three paragraphs:

“Someday, I’m going to die.

“This, I grudgingly accept. I have no idea how it’s going to happen. Maybe I will die of having a tree fall on me, of eating tainted shellfish, or of being struck by lightning. But this much I guarantee. I will not die of having wagered my life that TV carnival barkers, political halfwits and MAGA-hat-wearing geniuses know more than experts with R.N.s, M.D.s, and Ph.D.s after their names.

“In other words, I will not die of stupid.”

The complete column is right here.