If you’re a regular here, you will know that we have been paying particular attention to Ferris Backmeyer and her family, who are from Kamloops.
That’s because her mother, Lindsey, has been keeping friends and family (and us) updated on Ferris via Facebook.
Lindsey has poured out a mother’s heart in her posts, refusing to hold anything back. She has written with angst and anger and pain and, yes, even some humour as Ferris, at just three years of age, continues to travel a road that hopefully will end with a kidney transplant.
The outpouring of emotions is understandable as Lindsey helps guide husband Pat and Ferris’s two sisters — Tavia and Ksenia — through all of this.
The older girls — the “bigs” as Lindsey refers to them — were in Vancouver for three weeks before returning home with Lindsey’s mother after the weekend.
Lindsey and Pat now are completely focused on getting Ferris through this rough patch, helping her get well enough to go back on the transplant list, and back home. But the last bit hasn’t been an easy stretch.
For example, here’s a bit from a Facebook post by Lindsey on July 20 after doctors implanted a central dialysis line:
“Ferris had complications intraoperatively. The line was technically difficult because of her anatomy and while they were placing it they irritated her heart. Her higher potassium levels lower her threshold for things like that and she went into a PEA arrest. She had roughly 3 minutes of CPR and 1 dose of epinephrine when they got her pulse back. She was hypoxemic and difficult to ventilate for a bit afterwards. They were confident that it was noticed very quickly and that she responded fairly quickly. Thankfully they were able to extubate her and pull her art line before going to the dialysis unit.”
One day later, Lindsey wrote:
“As for today . . . she’s super low key but perked up by evening and wanted to go to the beach and build sand castles . . . so that’s what we did:) she spent about 5 minutes total on her feet today but that’s okay!! Lots of couch time. She’s sore and much happier with Tylenol on board. I’d be lying if I am not super anxious/protective over her right now. She has little pen crosses on her pulses and blood in her hair that I rinsed off into a paper towel. A bath was not a today thing. She has no idea what a big day yesterday was, and I don’t think I’ll ever forget it.”
Last Thursday, Ferris had more surgery as a peritoneal dialysis (PD) catheter was implanted. She had been doing PD at home when fungal peritonitis brought it all crashing down. That resulted in this most-recent trek to B.C. Children’s Hospital and all that has followed.
After Thursday was over, Lindsey, her emotions on her sleeve by now, wrote: “It was a super hard, inpatient kinda day.”
A day later, there were more complications, this time with cell counts.
“The question of when she could get listed again (for a transplant) comes up and at this point we just don’t know,” Lindsey wrote. “I’d be lying if I said I wasn’t shattered by today’s news.
“My heart is breaking for Ferris. She normally takes all the medical stuff in stride and right now she’s really struggling. I call it a trauma cry because it’s one I have hardly ever seen before and she looks like she’s being tortured. With things she used to handle like a champ. As she gets older navigating her mental health is so much more challenging and so ridiculously important!”
The next day, doctors had to put in an IV line, which brought this response from Lindsey:
“Oh man . . . after posting how she’s not doing so well coping . . first time ever IV placement without tears! This is her 5th IV this go-round and she’s not left with a lot of sites. She was so ridiculously cute and compliant for the nurse and she was friggin amazing with Ferris! Decent end to a not so awesome day!!”
And now the Backmeyers are playing something of a waiting game. As Lindsey wrote on Monday:
“So far the cultures haven’t grown anything! They have stopped the antibiotics. Gonna repeat a sample on Wednesday and if cell counts have trended down will likely drop the antifungals (she’s been on fluconazole since we got down here a month ago). Then it will be a bit of a wait-and-see. I think they will go ahead and start using the catheter as planned. Best case scenario . . . home in a couple of weeks!! Trying so desperately to remain optimistic!!
“Ferris wants nothing to do with a hospital bed after she gets out of it in the morning. All bad things start with that bed . . . I can’t really blame her! She’s passed out on the couch the last 3 nights. Hoping for a super uneventful week!!”
BTW, Lindsey and Pat celebrated their 16th anniversary last week.
“Happy Anniversary to the most incredible momma bear,” Pat wrote, above a photo of a snarling grizzly bear. On the photo, it read: “Fate whispers to the warrior, ‘You cannot withstand the storm.’ And the mama bear whispers back, ‘I am the storm.’ ”
If you are interested in being a living kidney donor, more information is available here:
Living Kidney Donor Program
St. Paul’s Hospital
6A Providence Building
1081 Burrard Street
Vancouver, BC V6Z 1Y6
Toll free: 1-877-922-9822
Here’s the deal on the above tweet. . . . It’s the story of Carrie, who has had a heart transplant and now has met the family of her donor. . . . From the Provincial Health Services Authority: “Filmed in February 2020, Carrie finally got to hug the family of Darcy, her organ donor. After 17 years of writing letters to each other, she was met with open arms by his mother Marie and brother Daryl in a first ever face-to-face meeting.” . . . The video is right here.