Sunday a day of freedom for Ferris . . . Zach needs a kidney, too . . . Want to help? Please contact Living Kidney Donor Program

The Backmeyers have found some freedom in Vancouver with Ferris being treated as an outpatient, at least for now.

Ferris, 3, slept on a couch on Friday night, a rarity for a child who has been on dialysis since she was 14 months old. Today (Sunday), she won’t have to dialyze and I really would love to know what will be going through her mind as she spends one entire day without having to hook up to a cycler for peritoneal dialysis (PD) or a hemodialysis machine.

FerrisSwing
Ferris spent some time doing kid things the other day in Vancouver. (Photo: Lindsey Backmeyer/Facebook)

The Backmeyers are from Kamloops. Ferris is in need of a kidney transplant. She had been doing PD at home, but she got hit with an infection, so Mom and Dad (Lindsey and Pat) had to take her to B.C. Children’s Hospital a week ago. There, doctors removed her PD catheter and transitioned her to hemodialysis, at least for the short term.

Lindsey informed Facebook followers early Saturday that they will take Ferris to BCCH on Monday, Wednesday, Friday and Saturday for hemo, with each run taking about three hours. Including pre- and post-, it takes about 3.5 hours. That is quite a change for a little girl who is used to being hooked up to a cycler for about 12 hours a night.

“Still gives us a decent amount of time out,” Lindsey wrote.

She added that they spent some time out Friday evening “and I think it’s safe to say we are all more comfy here! Now if it would only stop raining!!!!”

They almost certainly will be in Vancouver for another few weeks.

“The most current plan is to admit her during the first week in August and reinsert her PD catheter,” Lindsey wrote. “If it goes well we could be home mid-August. While it’s not a set-in-stone plan . . . it’s the one we have for now!”

On Thursday, Lindsey had written that “Ferris is slowly feeling better each day. She hasn’t had any Tylenol since noon (Wednesday) and has only cried a couple times in pain. . . .

“She’s still really low on physical energy but she continues to eat! We are back to full feeds and she’s still eating a ton. She’s eaten half a chicken in three days. . . . She’s constantly yelling for different foods . . .”

This will be a big week for Ferris as her big sisters are scheduled to arrive on Wednesday.

According to Lindsey: “Ferris asks about them a lot. They worry about Ferris and us when we are down here. It’ll be better for everyone if we are together. We had already discussed the possibility of spending the summer here if a transplant were to happen. Kinda preparing them that all our summer camping plans might be derailed. So this isn’t totally unexpected.

“The realization that we are here for awhile has been a huge pill to swallow. In fact I haven’t really yet. I’m still looking at how big it is!! For now, we plan for next week and hope that Ferris gets a bit stronger each day!”

——

Meanwhile, Zach Tremblay, now 17, continues to trek from his home in Robson, B.C., to Trail to do dialysis as he waits and hopes for a kidney transplant.

You bet that Zach can relate to what Ferris is going through, because he was transitioned from PD to hemo early this year.

Zach16

——

If you are at all interested in being a living kidney donor, contact the Living Kidney Donor Program at St. Paul’s Hospital in Vancouver. You don’t have to make an immediate commitment, but the folks there are able to prove you with more information and answer any questions you may have.

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


There are a lot of tests involved in finding out whether a potential kidney donor and recipient are a match. Three of those are blood tests — blood typing, tissue typing and cross-matching. . . . There’s a lot more on that right here.





Hamilton: Delay into January could be “real tough” . . . No CFR in Red Deer this year . . . Will Blue Jays be allowed to come home?

If the start of the WHL’s 2020-21 regular season is delayed for three months or more, it could be tough for some of the league’s 22 franchises.

That’s according to Bruce Hamilton, the owner of the Kelowna Rockets and the chairman whlof the WHL’s board of governors.

“I think all of us are prepared to get into January,” Hamilton told Rob Munro of infotel.ca. “Then it will get real tough for a whole bunch of people.”

The WHL issued a statement last week indicating that it is aiming to open the regular season on Oct. 2. The 2019-20 season, which was shut down on March 12, opened on Sept. 20.

With Hamilton telling Munro that “70 per cent of our business is ticket driven,” it is obvious that the WHL needs fans in the seats in order to play. If teams don’t get the OK from health officials to open the doors to at least 50 per cent capacity, the season won’t start on time — if at all.

But if the season does get rolling, Hamilton indicated that fans will see a few changes.

For starters, physical distancing will play a part in seating configuration. In fact, Hamilton said the WHL has heard from a company that has developed software to help with that.

“There is one company in particular that I know about,” Hamilton told Munro, “that has reached out to our league instead of coming to all the teams individually, that has created the software and it will be used whether it’s baseball, football, hockey, basketball.

“It’ll be that kind of thing, where they take your manifest for your building and then design it out of that.”

Munro’s complete story is right here.



We are almost into July and are waking up to discover that events scheduled for November are being cancelled.

And that can’t be good for junior hockey leagues that are hoping to get started in September and October.

On Wednesday, the 2020 Canadian Finals Rodeo was cancelled by the Canadian Professional Rodeo Association. It was to have been held at the Westerner Park Centrium in Red Deer, Nov. 3-8, with more than 43,000 fans expected to attend.

Don’t forget that the 2021 World Junior Hockey Championship is to be held in Red Deer and Edmonton, from Dec. 26, 2020, through Jan. 5, 2021.

Meanwhile, two marathons fell by the wayside on Wednesday, with organizers of the Berlin (Sept. 27) and New York City (Nov. 1) events cancelling the 2020 races.


An undisclosed number of players and staff with the Toronto Blue Jays have tested positive after being at the team’s training facility in Dunedin, Fla. . . . The facility has been shut down. . . . The Blue Jays now are looking to find a training camp site with players to report in a week. They have asked the Canadian government for an exemption from quarantine regulations in order to train and play regular-season games in Toronto. . . . Shi Davidi of Sportsnet has more right here. . . .

F Jabari Parker of the Sacramento Kings and G Malcolm Brogdon of the Indiana Pacers revealed on Wednesday that they have tested positive. Both plan on being back with their teams in time to resume the NBA season in Orlando, Fla., next month. . . .

Caddies who work for Graeme McDowell and Brooks Koepka have tested positive. As a result, McDowell and Koepka withdrew from the Travelers Championship that opens today (Thursday) in Connecticut. McDowell tested negative but apparently suspects that he has the virus, so he has gone home. . . . Webb Simpson also withdrew, as did Cameron Champ, who actually tested positive. . . . Simpson, last weekend’s winner on the PGA Tour, withdrew, saying a family member had tested positive. . . .

The U of Connecticut has eliminated men’s cross-country, men’s swimming and diving, men’s tennis and women’s rowing because of budget issues brought on by the pandemic. . . . UConn also has implemented a 15 per cent cut in operating budgets of all sports. . . .

There are reports that WWE has had as many as two dozen wrestlers and staffers test positive in Orlando, Fla.



Tire

Checking on Ferris Backmeyer and Zach Tremblay, two young people dealing with kidney disease . . .

It’s time to check in with a couple of our favourite young people — Ferris Backmeyer and Zach Tremblay — each of whom is dealing with kidney disease and is in need of a transplant.

Both are regular visitors to B.C. Children’s Hospital. Ferris and her mother, Lindsey, have just returned to Kamloops from their most recent trip, while Zach and Jana have been in Vancouver for a few days now, and are likely to remain there for a while yet.

Lindsey and Jana both took to Facebook on Wednesday to update friends as to the latest happenings. Hopefully, these will provide some insight into what people have to deal with they as they and/or their loved ones deal with kidney disease.

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Ferris, who is about to celebrate her third birthday, does peritoneal dialysis on a daily

FerrisJan2020
Ferris Backmeyer, soon to be three years of age, loves nothing more than to spend time drawing and smiling. (Photo: Lindsey Backmeyer/Facebook)

basis. She needs to gain weight, and maintain that weight, in order to have a transplant.

Here is a bit of what Lindsey posted:

“The take home from this trip is that she’s been managing pretty well from a dialysis perspective. Things are going well and our focus yet again seemed to be on growth . . . We have our wrapup from the assessment meeting with the transplant nephrologist Feb. 7. Our dialysis team is hopeful she will be ready to list/look into live donors by March.

“For the past few months we have seen audiology and ent each time we go down. Ferris’s hearing tests are abnormal. This took me by surprise as I’m fairly certain she can hear some stuff. She follows instructions and has conversations with us daily. However, I am starting to think that she likely can’t hear as well as we think and it’s likely why she isn’t speaking yet. And I mean no clear words . . . except no . . . and yah. She’s also increasingly frustrated that we don’t know what she’s saying (as she’s most definitely trying to talk) although learning some basic signs has helped with this.

“Anyway, they are taking it quite seriously and have put her on an emergent list and I’ve been told we will be back down likely within the next month for a hearing test done under general anesthetic and probable placement of tubes. After that, they will discuss whether she will need hearing aids. I’m hopeful that this might help her in the communication realm as we all know she is sooooo smart!

“She loves to draw and is practising her smiley faces. Her imaginative play is so incredible to watch. She will pretend her baby is hurt, sign for sad and then pull an imaginary Bandaid out of thin air and pretend to put it on, then say happy! She loves to dance and her favourite songs right now are ‘Me Too’ by Meghan Trainor and Dance Monkey.

“In just a couple short weeks, little miss will be 3 and I can’t wait to see how she grows!”

——

Lindsey ended her latest post with this:

“We also got to meet my friend Jana (Tremblay) and her kidney friggin warrior Zach!! Was by far the best part of this trip for me!! It was so nice to chat with people who are dealing with something similar to us! I hope to meet up with them again sometime soon, and hope even more that Zach gets the kidney he so desperately needs!!”

It is tremendous news that Lindsey and Jana finally met and you can bet that they will continue to communicate with each other. This kind of support is invaluable and is the reason why we started the Kamloops Kidney Support Group. Words can’t express the importance of being able to meet and talk with people who can relate to what you have dealt with and are going through.

(BTW, the KKSG’s next meetings are Feb. 8 and 12; we meet on the the second Saturday (9 a.m.) and Wednesday (10 a.m.) of each month.

——

Jana and Zach, who are from Robson, B.C., remain at B.C. Children’s Hospital as Zach, 16, is transitioned from peritoneal dialysis to hemo. On Wednesday, Jana posted:

“We have had a few big changes and a few tough days. Our boy is a rock star though, as always, and seems to be handling these things with courage and more grace than most adults would.

“Peritoneal dialysis is no longer working for Zach. On Friday, he had surgery to have a hemo catheter placed, and we will be transitioning over to hemo dialysis permanently until we can find his match.

“We have no time frame on coming home atm. We are just working to get him successfully running hemo, and to be a healthier him.

“I don’t have many more answers than that at the moment .

“Please keep him in your thoughts and prayers as we make this leap into the adult world of dialysis. We can’t move here for him to have treatment 3x per week, and the local dialysis unit in Trail is not connected to Children’s in any way, so our dialysis time here, and with our team, will come to an en . . . Bittersweet, but life.

“Please keep sharing his story in hopes it reaches the right set of eyes!”

——

If you would like more info on being a living kidney donor:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


“The Ministry of Health is seeking a contractor to build an organ and tissue donation registry, and it’s leaving its options open in case the province later adopts an opt-out donation model,” Arthur White-Crummey of the Regina Leader-Post wrote earlier this month. “Health Minister Jim Reiter revealed the government’s plans for an online registry in March of last year, signalling that the system should be up and running by the end of the fiscal year in April.

“The plan is now moving forward after a slight delay. The Ministry of Health posted tender documents Thursday seeking proposals to build the system. It is now hoping for the registry to be available to the public, “ideally,” by mid-June of this year.”

The complete story is right here.





Celebrating 40 years with a donated kidney . . . More important news from the Cleveland Clinic

These are the kind of stories we like to read. . . . Tom Mitrovski of Toronto is 72 now. There was a time when he never thought he would see 50.

He underwent a kidney transplant on Nov. 27, 1979, thinking then that he had five to 10 years left. . . . Tom Hayes of Global News has the story right here.


Doctors at the Cleveland Clinic have successfully performed a laparoscopic liver transplant, the second time such an operation has been done in the U.S. . . . Chris Cantergiani of WKYC has more right here, and there is a lot of interesting stuff in the story.

Earlier this year, doctors at the Cleveland Clinic performed the first robotic single-port kidney transplant, doing it all through one small abdominal incision. There’s more on that story right here.






McLennan celebrates two years with friend’s kidney . . . Kamloops woman finally gets her transplant

Hugh
Two years ago, Hugh McLennan (second from left) and Louis (Big Rig) McIvor were roaming the halls at Vancouver General Hospital, along with Hugh’s wife, Billie. The big question: Where in the big city did they tie up their horses? (Photo: Hugh McLennan/Facebook)

Happy anniversary to Hugh McLennan, who has been living for two years with a transplanted kidney, courtesy of his good friend Louis (Big Rig) McIvor.

Here’s what Hugh wrote on his Facebook page on Saturday:

“Two years ago (Friday) this guy gave me one of his kidneys! We’re both doing fine and we’d encourage you to look into being an organ donor and if you know someone on dialysis look into getting tested as a living donor.”

Now that is really sound advice.

Hugh and his wife, Billie, own and operate a ranch near Pinantan Lake, just outside of Kamloops.


Best wishes to Melissa Wells of Kamloops, who underwent a kidney transplant on Nov. 9.

Melissa has a kidney disease — Type 3 Membranoproliferative glomerulonephritis (MPGN) — that resulted in kidney failure. She spent more than six years waiting for a transplant, all the while doing dialysis.

In July, her husband, Marty, wrote:

“She’s been through countless failed surgeries, successful surgeries, and even had a direct line put into her heart just so she was able to get treatment to stay alive.”

Marty also added something that, with all that Dorothy has been through, I think of regularly. It has to do with the number of people walking around who live with kidney disease but don’t give any appearance of being ill.

“If you saw Melissa today she would seem totally normal,” Marty wrote in July. “She goes about her daily life — visiting family, hanging out with friends, going shopping. What you don’t see is her strength. She fights through constant headaches, nausea, fatigue, shooting pains through her arm, and overall pain of having major organ failure. The constant needling of her arm almost every day and the perpetual surgeries she has to deal with in Kamloops, Kelowna, and Vancouver are exhausting and expensive.”

The good news is that Melissa has a new kidney now. Here’s hoping that all goes well.


What happens when an organ or organs come available for transplant? How quickly does the window of opportunity close? When there is a death, how many organs might be available for transplant? What about tissue, corneas, etc.? . . . Shawn Logan of Postmedia has an excellent look at all of that and a whole lot more right here.


Susan Bell and Dorothy Stewart of CBC News have produced a story that includes Colleen Atsynia, a single mother of five.

According to the story, she “was in her mid-40’s when kidney disease forced her to leave her job, her family and her northern Quebec community of Wemindji for dialysis treatment in Montreal.”

As Atsynia told the reporters: “When you first find out you need a transplant, to me it felt like, ‘OK, that’s it. I’m done. I’m just going to die.”

According to the story, Atsynia’s life changed when “someone she doesn’t know gave it all back to her by donating a kidney” in May 2018.

“I was extremely happy because I knew I was going to finally come home,” she said. “My kids were happy . . . they were really happy.”

That story is right here.




This doesn’t have anything to do with transplants or kidney disease, but it is a great watch . . .


About pediatric kidney transplants, flu shots, curried turkey casserole . . .

I wrote earlier this week about Ferris Backmeyer, and you may be wondering how in the world someone who is only 2-1/2 years of age is able to undergo a kidney transplant.

Ferris, who lives in Kamloops with her mother, father and two sisters, has kidney disease. She has been doing peritoneal dialysis at home for 18 months now.

Her mother, Lindsey, recently revealed on Facebook that they have been given the OK to

Ferris
Ferris Backmeyer, 2-1/2 years old, needs a kidney transplant. (Photo: Lindsey Backmeyer/Facebook)

look for a living kidney donor for Ferris.

“We have been told the donor process can take just as long as the transplant workup for Ferris,” Lindsey wrote, “so starting the search now is recommended.”

Obviously, Ferris isn’t going to get a kidney from a three-year-old living donor. So let’s look at a few things . . .

First, from the Kidney Foundation of Canada (kidney.ca):

“A living kidney donation comes most often from a family member such as a parent, child, brother or sister. A donor can also be a spouse, friend or co-worker. Or it can be a stranger. A genetic link between donor and recipient, although beneficial, is not always required. This is largely due to improved anti-rejection medications.

“A good living donor candidate is someone who is healthy, well-informed and makes a voluntary decision to donate one of their kidneys. Living donors must be over 18 and usually less than 70 years of age. They must be in good general health . . .”

So if you are older than 18, you are eligible to be a kidney donor.

While it is preferred that donors be under the age of 70, there are stories of donors who have been older. Health, both physical and mental, plays a huge role in donor eligibility, no matter the age.

When it comes to children, it would seem that having a live donor is the best option.

A 1982 report published in The Journal of Pediatrics reached this conclusion:

“We conclude that because of donor availability, capacity for good donor-recipient matching, and minimization of time on dialysis, transplantation of adult kidneys into pediatric patients is preferable to awaiting the relatively uncommon pediatric cadaver donor. We further conclude that the procedure is warranted.”

Despite the passage of time, it doesn’t seem that there has been any change to that conclusion.

Meanwhile, there is this from webmd.com:

“The reason most hospitals suggest an age minimum of 18 for kidney donors isn’t because a young kidney is too small. Studies have shown that a kidney from a six-year-old is all right to transplant into an adult.

“Instead, the main reason is that people under 18 are minors and can’t legally give their ‘informed consent’ proving that they agree to the procedure. Also, some genetic kidney diseases won’t have started to cause symptoms yet in young children and teenagers, so it’s hard to know if their kidneys may be affected by disease. . . .

“Kidneys from younger donors seem to work better over the long term. But people who get older kidneys are just as likely to be alive five years after a transplant as those who receive younger kidneys. Plus, the chances of complications from the procedure, and of organ rejection — when someone’s immune system attacks their new kidney — are the same with kidneys from all age groups.

“The takeaway from these studies is that kidneys from older donors can work, but younger people in need of a kidney may want to consider being matched with younger donors.”

There also is this, from stanfordchildrens.org: “A child older than age two can generally receive an adult kidney. There is usually enough space in the child’s belly for the new kidney to fit.”


Yes, it is that time of the year, again.

I am married to a woman who had a kidney transplant on Sept. 23, 2013. That doesn’t mean she has been cured of kidney disease; there isn’t a cure.

Having had a transplant, she must take anti-rejection medications in order to keep her system from rejecting the foreign object that now lives in the lower right side of her abdomen. Some of those medications — she takes them every 12 hours — are immunosuppressants, so her immune system is compromised.

So, yes, I get an annual flu shot. In fact, I got poked on Friday.

You have no idea how many people who are walking around out there have suppressed immune systems or are unable to get a flu shot for medical reasons.

Here is Nicole Basta of the U of Minnesota, the senior author of a study on “herd immunity,” in a story by Lisa Rapaport of Reuters:

“The more people who are vaccinated in a community, the lower the risk that influenza will be able to spread even if the vaccine does not perfectly protect against the disease.

“Influenza spreads by creating chains of transmission whereby one infected person infects additional people and those individuals infect others with whom they come in contact.”

Rapaport’s story is right here.

Flushot





Vosburgh of Kamloops donates a kidney. . . . Recipient: “She changed my life.”

CherylVosburgh
Cheryl Vosburgh of Kamloops, who knows all about being a living kidney donor, addresses the crowd during the city’s 2019 Kidney Walk. (Photo: Murray Mitchell/Murray Mitchell Photography)

To a person experiencing kidney failure, there are a number of advantages to being fortunate enough to get a transplant from a live donor.

From the Kidney Foundation of Canada website:

“The organ donation and transplant surgeries can be scheduled when both the donor and recipient are in the best possible health. This will help to ensure the quality of the donated kidney is at its highest. The amount of time between removing the kidney from the donor and transplanting it into the recipient is shorter than for a deceased donation. This may help the transplanted kidney to function better and/or last longer.

The length of time the recipient waits for an organ to become available is shorter when the organ comes from a living donor. Also, other recipients on the transplant waiting list who do not have a living donor themselves move up the transplant waiting list once the recipient of the living donor kidney is removed from the list. In that way, other people waiting for a kidney transplant also benefit from a living donation.”

There also are some other advantages, as pointed out on the Foundation’s website:

“A transplanted kidney from a living donor often lasts longer. This is partly due to more time being available to do the necessary tests to get a better tissue match between donor and recipient. A better tissue match means higher compatibility and less risk of organ rejection.

The kidney from a living donor is usually healthier than an organ from a deceased donor and may last longer: 15 to 20 years on average, compared to 10 to 15 years for a deceased kidney donation. This is largely because extensive testing is done on the donor to ensure the donor has excellent kidney function.

“A kidney from a living donor usually works right away in the recipient. A kidney from a deceased donor may take days or weeks before it starts to work normally. In the meantime, the recipient may need dialysis treatments.”

And let’s not forget about this: For the donor, it is a very positive psychological experience knowing that he or she has helped someone in need.”

All of which brings us to the story of John Glenn Miller of Vancouver and Cheryl Vosburgh, who lives in Kamloops.

“Two years ago,” writes Cheryl Chan of Postmedia, “John Glenn Miller pushed through his embarrassment and discomfort to make a plea online for a new kidney. Today, he’s a new man — thanks to a priceless gift from a stranger.”

Vosburgh was that stranger.

A story about Miller, who has 12-year-old twin sons, appeared in a Vancouver newspaper in April 2017. He needed a kidney. As he waited and hoped that a match would somehow be found, and while he was on dialysis, Vosburgh made the decision to donate a kidney.

In researching the issue of kidney donation, she came across that 2017 story about Miller. Things worked out and the surgery was performed at Vancouver General Hospital on Aug. 21.

Chan’s story can be found in the tweet that is below.

Vosburgh, 59, lives in Kamloops and attended her first Kamloops Kidney Support Group gathering exactly three weeks after having had surgery. We were an enthralled group as we listened to her tell her story.

She also said that she wants to continue to advocate for organ donation and transplantation. If you are thinking about being a live kidney donor and have any questions, email me at greggdrinnan@gmail.com and I will get you in touch with Vosburgh.


Dogs
When Kamloops’ 2019 Kidney Walk was held at McDonald Park on Sept. 22, organizers welcomed four-legged walkers, too. (Photo: Murray Mitchell/Murray Mitchell Photography)
Breakfast
Yes, those of us who took part in the 2019 Kidney Walk Kamloops had enough sausages to eat with our breakfast, thanks to the Brock Central Lions Club. (Photo: Murray Mitchell/Murray Mitchell Photography)

——

ThankYou


Report: There are 3,500 donated kidneys discarded every month in U.S. . . . Survey published in JAMA shows system is badly broken

A reader sent me a link that led me to a story on USA TODAY’s website. I had to read the story a couple of times because I found it so shocking.

Here are the first two paragraphs:

“The United States discards about 3,500 donated kidneys a year, many of which could be used to save lives, new research shows.

“The study, published Monday in the journal JAMA Internal Medicine, focused on the rate at which donated kidneys were used in the U.S. and France between 2004 and 2014. In that time, the U.S. discarded about 17.9% of the kidneys it recovered, while France discarded about 9.1% of the kidneys it recovered. In all, the U.S. threw away almost 28,000 donated kidneys in that 10-year period.”

Let that sink in for a few minutes. People are dying because they need kidneys and yet donated kidneys are being trashed.

The study was published in JAMA — The Journal of the American Medical Association.

During the time under study, the U.S. recovered 156,089 kidneys from deceased donors and discarded 27,987 (17.9 per cent) of them. In France, 29,984 kidneys were recovered, with 2,732 (9.1 per cent) of them discarded.

According to figures supplied by the National Kidney Foundation, there are almost 100,000 Americans in need of kidney transplants. While 12 people on the waiting list die each day, about 10 kidneys are trashed each day.

Adrianna Rodriguez of USA TODAY wrote:

“The study showed that kidneys discarded in the U.S. were on average about 36 years old, whereas kidneys discarded in France were on average about 50 years old. That means  France had a higher kidney acceptance rate from older donors.

“The study found that the U.S. is more likely than France to throw away kidneys when the donor had hypertension, diabetes, had a heart attack or tested positive for Hepatitis C.”

That story also included this quote from Sumit Mohan, associate professor of medicine and epidemiology at Columbia U in New York City: “They should definitely be used and are definitely viable. Using kidneys from diabetic donors do remarkably well.”

Rodriguez points out that “the mortality rate for patients who go on dialysis is about 20 per cent annually, which works out to be a five-year survival rate.”

Mohan told Rodriguez: “It’s comparable to some of the worst cancers we see.”

Keep in mind that while some cancers are curable, there isn’t a cure for kidney disease. No, there isn’t.

Mohan added: “People aren’t asking ‘What’s the quality of my kidney?’ The question that everybody asks is, ‘When am I getting my kidney?’ ”

In short, the system in the U.S. is broken. The good news it that there is a move afoot to overhaul the country’s organ transplant regulations. The bad news is that we all know that won’t happen this week or next.

The USA TODAY story is right here and it really is worth a read.

The complete JAMA Internal Medicine study is right here, and it is absolutely devastating if you are an American and at all impacted by kidney disease.

Another reader sent me a link to an editorial in the New York Daily News. The editorial board there writes: “Beggars know they can’t be choosers. Even an imperfect kidney is better than life, and ultimately death, on dialysis. Fix the rules so more Americans can receive the gift of life.” . . . The complete editorial is right here.

All of this hits really close to home. My wife, Dorothy, had a kidney transplant on Sept. 23, 2013. Had we been living in the U.S., the kidney she received likely would have been rejected because it may have failed one of the afore-mentioned qualifiers.

At that point, she had been doing peritoneal dialysis for almost four years.


If you are in the area of Granville Island in Vancouver early in September, you may want to check out this play — Waiting Time — that will be part of the Fringe Theatre Festival.






Stroup family cries tears of joy after organs donated. . . . Daughter had registered two years ago as donor

Folks in Kamloops will gather at McDonald Park on Sept. 22 for the annual Kidney Walk. If you would like to participate, we register at 10 a.m., walk at 11, and have breakfast when it’s all done. The Brock Central Lions Club supplies the breakfast — pancakes, sausage and coffee — by donation.

We held a news conference on Monday at St. Andrews on the Square. If you are curious about how the media saw what we had to announce, here’s a look . . .

Chad Klassen of CFJC-TV filed a video report and wrote a story, both of which are right here.

——

John Luke Kieper of KamloopsBCNow was on hand, too, and he posted his story right here.

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Dairai Mutandiro of Kamloops Matters joined us and wrote this piece right here.



Tara Stroup’s daughter, Madeline, was in a coma for seven days after being involved in a car crash in Abbotsford, B.C., on July 26. When the family decided to take Madeline off life support and donate her organs, they discovered that she had registered as a donor. . . . Tara spoke with Estefania Duran of CBC News about the decisions involved and the aftermath. That story is right here.