What a kid! Smiling Ferris turns 4 . . . Scully looking for living donors . . . Nova Scotia opt-out program looking good

Ferris1
Despite a medical procedure earlier Friday, Ferris Backmeyer was able to have a great sucker-sucking time at her fourth birthday bash. (Photo: Lindsey Backmeyer/Facebook)

Ferris Backmeyer celebrated her fourth birthday on Friday in Vancouver.

Ferris, who is from Kamloops, underwent a medical procedure earlier in the day — she also had one on Wednesday — before being able to take part in the birthday party mostly planned by older sisters Tavia, 9, and Ksenia, 7.

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When Ferris got back from the hospital, her big sisters had their Vancouver residence all decked out and it was time to party. (Photo: Lindsey Backmeyer/Facebook)

Ferris is an amazing young lady, having already gone through what would seem to be a lifetime worth of medical situations. If you aren’t aware, she has been in kidney failure for most of her life, meaning that she has been doing dialysis — either hemo or peritoneal — for most of that time.

“Being in kidney failure is all she knows and I can’t wait for her to be free of dialysis,” her mother, Lindsey, wrote on Facebook. “I can’t wait to see how she’s gonna soar!”

Having gained the necessary weight, Ferris has been on the transplant list for almost a year now and, after one false alarm earlier this month, her family can only continue to wait and hope.

So how is Ferris at 4?

According to Lindsey, “Three was such a big year for her. She had very few words a year ago and now has sooooo much to say. . . . She has endured a lot of medical procedures and I’m always so amazed at how well she does. She’s showing all the nurses and doctors her sassy personality and, aside from being ridiculously cute, she’s pretty funny too!”

It’s never a fun time when your child is on the receiving end of a medical procedure, and that was the case for the Backmeyers on Wednesday and Friday.

But after Friday’s latest adventure was over . . .

“The ship must sail on so to speak,” Lindsey wrote, “and we had a birthday to get ready for. Being true to myself I was up until 2 a.m. finishing the piñata . . . she ‘lubbed’ it!

“She’s really where one would expect if not better for being post op. Lots of sitting and playing (Friday) and standing only to brush her teeth before bedtime. Regular Tylenol and pretty sore at times needing to lay down. We got to bring her home after dialysis and the girls were soooo excited! They had the place all set up. It was perfect.”

Now about that kidney . . .


You may recall hearing or reading about Scully White, the gentleman who operates a hot dog stand at a Canadian Tire in Abbotsford, B.C., and donated a kidney to a customer before Christmas. . . . Well, White now has launched a campaign — It’s For The People — aimed at finding live kidney donors. As Vikki Hopes reports, White “has about 10 people looking for kidneys and about 12 donors who have started the process of blood and tissue sampling.” . . . Hopes has a whole lot more on this story right here.


The head of Nova Scotia’s organ donation program is cautiously optimistic the new presumed consent law is being embraced after seeing the latest numbers on the province’s opt-out registry,” writes Carolyn Ray of CBC News. “Nova Scotia became the first place in North America to switch to an opt-out organ and tissue donation law on Jan. 18. It presumes all adults consent to be donors, unless they say otherwise. Just 10 days after the law was implemented, the Department of Health and Wellness says 11,800 Nova Scotians have registered to opt out. That’s about one per cent of the province’s population.” . . . Ray’s complete story is right here.








If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca

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Vancouver General Hospital Living Donor Program – Kidney 

Gordon and Leslie Diamond Health Care Centre

Level 5, 2775 Laurel Street

Vancouver, BC V5Z 1M9

604-875-5182 or 1-855-875-5182

kidneydonornurse@vch.ca

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Or, for more information, visit right here.


Want to feel awesome in less than 2 minutes? Register as an organ donor today. 1 organ donor can save up to 8 lives. Taketwominutes.ca #TakeTwoMinutes. 

If you haven’t already, prepare to fall in love with Ferris . . . BC Transplant releases statistics from 2019

I have written here before about Ferris Backmeyer, a three-year-old from Kamloops who continues to do peritoneal dialysis as she and her family wait and hope that a kidney transplant is in her future.

If things continue to progress, Ferris’s name will go on the deceased donor list at some point in March.

In the meantime, Jill Sperling of CFJC-TV in Kamloops did a story on Ferris that appeared on Thursday newcasts. It’s all right here. But a few words of warning . . . if you haven’t watched anything on Ferris prior to now be prepared to fall in love.


CBC News posted a story by Carolyn Ray on Wednesday and part of it absolutely blew me away.

“Doctors in Nova Scotia have discovered many families are refusing to allow a loved one in a traumatic situation to donate their organs, even if the patient has signed their donation card,” Ray wrote.

She continued: “Dr. Rob Green, the provincial medical director for Nova Scotia’s trauma program, worked on three studies looking at trauma patients and donation rates between 2009 and 2016. He looked at patients who were identified as potential donors but didn’t donate. He said he was shocked to discover that nearly 50 per cent — 28 out of 60 cases — were because the family refused to go forward.”

Dr. Green told Ray: “I didn’t expect that at all. Some of these patients signed their driver’s licence, saying they wanted to be an organ donor, and their family did not respect their wishes.”

Ray’s complete story is right here.

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Nova Scotia’s organ donation program is called Legacy of Life; its medical director is Dr. Stephen Beed.

Toby Boulet and his wife, Bernadine, lost their son, Logan, in the crash of the Humboldt Broncos’ bus almost two years ago. Logan had registered as an organ donor shortly before the crash, and eight of his organs were harvested. Since then, the Logan Boulet Effect has become a real movement with Toby and Bernadine become advocates for organ donation.

Toby, via Twitter, offered this:

“Dr. Beed was with Logan and our family throughout the most difficult time of our lives. His work in both NS and SK is amazing and families need to support the organ donor wishes of a family member. Families need to TALK — not just register!”

At the same time, the Green Shirt Day account on Twitter added:

“Both Green and Beed want more families to talk openly about their wishes as much as possible. Green said if they make it clear in advance, it helps a family cope during an emotional time.”


KidneyStats

As of Jan. 31, according to BC Transplant, there were 1,523,663 donors registered with the B.C. Organ Donor Registry.

In January 2020, there were 55 organ transplants performed in B.C., with 32 of those involving kidneys — 23 from deceased donors and nine from living donors.

As of Jan. 31, there were 777 people in the province waiting for organ donations with 619 of those needing kidneys.

At the same time, there were 5,221 patients in the province who were being followed post-transplant. All told, 3,500 of those patients have had kidney transplants.

More numbers from 2019, all from BC Transplant:

There were 480 lives saved, down from 502 in 2018.

Surgeons completed 331 kidney transplants, down from 339 in 2018, with 120 involving living donors and 117 from deceased donors.

As well, in 2019 there were 68 liver transplants (77 in 2018), 46 lung transplants (50) and 31 heart transplants (28).

According to BC Transplant, as of Dec. 31, there were 5,182 British Columbians alive because of organ transplants.

BC Transplant has issued a news release detailing all of this and more, and it’s all right here.


Aimee and Kevin Hatcher of Brandon, Man., are determined that their son Luke, who died at the age of 12, will be remembered. With that in mind, they are starting what they call the Green Heart Project. . . . As Riley Laychuk of CBC News writes: “While (Aimee) doesn’t know what her end goal is yet, Hatcher said she envisions a foundation focused on raising awareness about organ donation and supporting families who are faced with tough decisions.” . . . Luke died in December following an accident in the basement of the family’s home. According to Aimee, Luke’s kidneys, lungs, liver and pancreas all were transplanted. . . . Laychuk’s story is right here.




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