The strain of loving a critically ill child . . . Bedard scores twice in WHL debut, but Pats lose . . . BCHL prepping to play games

Ferris2
That’s Elmo from Sesame Street keeping Ferris company in her hospital bed in Vancouver. Ferris’s mother, Lindsey, says her daughter often crosses her legs in this fashion. (Photo: Lindsey Backmeyer/Facebook)

If you’re a parent with a young child, you will have known the helpless feeling that takes over when your youngster is ill. Still, you know that the illness will be gone in a day or two and your child will be back to running and playing and generally creating havoc.

But what if your child was four years of age and had been ill, seriously ill, for most of that time? What does that do to your emotional state and to that of others in your family? What about your family’s financial status when there have been numerous trips to Vancouver, along with a number of lengthy stays?

That is the situation in which Lindsey and Pat Backmeyer find themselves. Ferris, their four-year-old daughter, was diagnosed with Mainzer-Saldino Syndrome shortly after birth and has been on dialysis — peritoneal dialysis (PD) or hemo-dialysis — for most of her life. She now is in B.C. Children’s Hospital in Vancouver after having undergone a kidney transplant a week ago. Unfortunately, the kidney began bleeding into Ferris’s abdomen and had to be removed a few hours later.

Ferris was moved from the Pediatric Intensive Care Unit on Thursday but still has a long road ahead of her.

Lindsey is a respiratory therapist at Royal Inland Hospital in Kamloops and hasn’t been shy about telling Ferris’s story, even if it means baring her own soul. It’s hard to read Lindsey’s writings without your gut tightening, your heart breaking and your eyes tearing up.

“We have felt an overwhelming cocoon of support by my work family . . since the beginning,” Lindsey wrote earlier this week after Alexa McMillan, a co-worker, issued a plea for financial help to the Kamloops business community. “They protect me, provide for me and my family and have provided endless emotional support.”

As someone who works in the healthcare field, Lindsey has “a pretty solid understanding of critical care medicine and the reality is Ferris has been critically ill for a huge part of her life.

“I’ve spent four years assessing her and caring for her and very few people actually know what it’s taking to keep our ship afloat. My immediate family, closest friends, home nurses and then my work people probably understand best.

“I’ve worked on the other side of what I witnessed Saturday. It was like the hardest night shift ever, where you just did all the things working on your patient for hours except I so rarely see people survive that. I’ve been scared for Ferris’s life before and every time I’ve had a work person by my side . . . through the night. Saturday night was no exception.”

Her training and understanding of all that she and her family — including daughters Tavia, 9, and Ksenia, 7 — have been through has Lindsey knowing full well what’s happening to them from an emotional standpoint, but also financially.

“I have ridiculous trauma to overcome,” Lindsey explained. “My work family would also attest that I’ve worked really hard to keep it all going. If we aren’t here or she’s not admitted, I’ve been at work. Lots of times it’s the very next day. The reality is Ferris’s life has been financially devastating and I really just want to be able to maintain the quality of life we’ve had. For my big girls and for Ferris.

“Even if we get to make our way home . . . I know now this will never be over.”

While the Backmeyers do have a home in Kamloops, they have been in a rental in Vancouver since the last week of December. Pat has been doing a lot of commuting as he attends Thompson Rivers University in Kamloops, with plans to become a registered nurse.

The whole family, including Lindsey’s mother, Leslie, thought they were on their way back to Kamloops last weekend, but then the call came saying that a kidney was available and transplant surgery had been scheduled.

“Living in limbo is pretty accurate,” Lindsey wrote, “or like a marathon that you never get to finish but always have to run. Feels like we are on a runaway train. It’s bumpy and scary and makes you nauseous and every once in awhile we get allowed off and create life and memories and then the train comes and we have no choice but to get back on.

“If and when we get to go home I need to give myself a bit of time before coming back. I never have done that before. Ever.”

In her plea to local businesses, McMillan asked that they contact her or donate to a GoFundMe page that has been set up to benefit the Backmeyers. That page is right here.



The WHL’s Regina hub swung into game action with two games on Friday. The Pats dropped a 6-3 decision to the Prince Albert Raiders in the second game, with highly touted Regina F Connor Bedard, 15, scoring his first two goals at 5:01 and 5:49 of the second period. . . . In the earlier game, the Moose Jaw Warriors got past the Brandon Wheat Kings, 4-3, in OT. . . .

Meanwhile, the Portland Winterhawks announced that their final 11 home games of this developmental season will be played at the Veterans Memorial Coliseum in Portland. Their first home game, on March 21, is to be played at the accesso ShoWare Center in Kent, Wash. . . .

As first reported by Greg Harder of the Regina Leader-Post earlier this week, Shaun and Gavin Semple of the Brandt Group of Companies now own all of the Regina Pats. They had owned 50 per cent and now have purchased the other half from Todd Lumbard and Anthony Marquart. The move was unanimously approved by the WHL’s board of governors on Friday. Shaun Semple has replaced Marquart as the franchise’s governor. Lumbard, a former goaltender with the Pats and Brandon Wheat Kings, had been the team president; he remains with the organization as an advisor.


Menu


The BCHL has received the all-clear for the return of game play from provincial government and health officials. The league plans to set up pods in five league centres — Chilliwack, Coquitlam, Penticton, Port Alberni and Vernon — with three or four teams in each place. The abbreviated season will begin the first week of April and the hope is that each team will play 18 or 20 games before it ends. . . . The Wenatchee, Wash., Wild opted out of this season because the U.S.-Canada border is closed to non-essential travel. That leaves the BCHL with 17 teams that could being play in April, although the league has given teams a couple of days to make that decision. . . .

Meanwhile, the AJHL had 13 of its 15 teams back playing games on Friday for the first time since Nov. 21. The final all-clear came earlier in the day when it announced that its third round of testing featured 389 players and staff, and no positives. . . . The Canmore Eagles and Lloydminster Bobcats are the only two teams not playing, both having opted out. . . . On Friday, five games were played in five different venues with all teams playing in their home arenas.


Deadspin has put together a brief slideshow that provides some first-person information on a handful of high-profile athletes who have contracted COVID-19 and their experiences. It’s right here and well worth a look.

One slide features Demi Washington, a Vanderbilt basketball player. Washington, 19, had a mild case, but wasn’t allowed to return to play until she had a cardiac MRI. That test uncovered acute myocarditis.

“It’s horrifying to think that, without that MRI, I would have gone back out there and played and something could have gone wrong,” she wrote for The Athletic. “I could have passed out on the court. I could have died. I saw what happened to Keyontae Johnson and it terrified me. After he collapsed, he was ultimately diagnosed with acute myocarditis — just like me. I wonder how many other athletes are playing with it right now and have no idea.”


Quarantine


The Duke Blue Devils men’s basketball team had its season come to an end on Thursday with the news that one player tested positive. That knocked the Blue Devils (13-11) out of the ACC tournament and may have taken away any chance they had of qualifying for March Madness. The last time Duke was in the NCAA tournament was 1995. . . . “If they do get an invitation, it will be a basketball equivalent of a ‘Lifetime Achievement Award,’ Jack Finarelli, aka The Sports Curmudgeon, wrote on Friday. “This year’s Duke squad is not nearly as powerful as the ones that fans have come to expect for most of the Mike Krzyzewski Era in Durham.” . . . On Friday came word that No. 16 Virginia had to pull out of the ACC tournament because of a positive test, thus forfeiting a semi-final game to Georgia Tech. Virginia no doubt will get an at-large bid to the NCAA tournament. Virginia won the title in 2019; there was no tournament a year ago. . . . Also on Friday, No. 11 Kansas withdrew from the Big 12 tournament after a positive test. The Jayhawks were to play No. 13 Texas in a semifinal game, so the Longhorns now are into the final. . . . Florida International and North Carolina A&T are among smaller schools that have had to withdraw from tournaments. . . . The 2021 tournament is scheduled to begin on Friday in Indianapolis. . . . The Sports Curmudgeon has more on the tournament right here.


You will recall that Clarkson shut down its men’s hockey program for this season earlier in the week and there was speculation that the move was virus-related. College Hockey News reported via Twitter on Thursday that it “was a school decision based not on positive COVID tests — but on a party attended by most of the team that broke the school’s COVID safety protocols.”

——

College Hockey News also reported that the Bentley Falcons (5-11-0) had withdrawn from the Atlantic hockey tournament. One week earlier, Holy Cross pulled out before the first round began. . . . Bentley had beaten Air Force to move into a second-round best-of-three series against American International, which now gets a bye into the semifinals. . . . From CHN: “For its part, AIC hasn’t played since January, due to its own COVID-19 issues and that of other league teams. By the team of the semifinals, the Yellowjackets will have gone almost seven weeks without a game. Bentley missed most of January with COVID issues, though played most of February.”


Once again, thanks for asking how things are going in B.C., as government and health officials work on loosening some restrictions . . .

Robyn Crawford, CKNW/Global BC — 648 new cases; no new deaths; 255 in hosp, 67 in ICU; 5,070 active; 9,155 in isolation; 79 new variant cases (total at 717).

CBC News — Alberta is reporting 425 new cases of COVID-19 and 2 additional deaths. And 365 more people have recovered from coronavirus.

CBC News — Number of new COVID-19 cases in Saskatchewan climbs again with 176. That pushes the province’s 7-day average up to 134; 3 additional deaths have also been recorded.

CBC News — Manitoba announces 104 new cases of COVID-19, the 1st time the number has been above 100 since February 18. The province’s 7-day average now rises to 74. Health authorities also say there has been 1 additional death.


——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca

——

Vancouver General Hospital Living Donor Program – Kidney 

Gordon and Leslie Diamond Health Care Centre

Level 5, 2775 Laurel Street

Vancouver, BC V5Z 1M9

604-875-5182 or 1-855-875-5182

kidneydonornurse@vch.ca

——

Or, for more information, visit right here.



JUST NOTES: Former WHL F Ryan Hollweg is the new head coach of the U18 AAA Vancouver North West Hawks. Hollweg, 37, played 233 games with the Medicine Hat Tigers over five seasons (1999-2004) before going on to a pro career that included 228 NHL games. He finished up playing (2012-18) with HC Plzen in the Czech Extraliga. Hollweg was the North West Hawks’ associate coach for two seasons (2018-20) under Chris Shaw.


Wreath

Lindsey Backmeyer: We got the callllll!!! . . . Ferris, 4, being prepped for Saturday morning kidney transplant

Ferris1
Ferris Backmeyer, 4, is scheduled to have a kidney transplant on Saturday morning in Vancouver. (Photo: Lindsey Backmeyer/Facebook)

If all goes according to plan, Ferris Backmeyer, 4, of Kamloops, will receive a new kidney on Saturday morning in Vancouver.

Her mother, Lindsey, posted the good news on Facebook on Friday morning:

“Oh my goodness I don’t have words. I knew this would happen . . . or was hoping so badly that this would happen!! We got the callllll!!! Mom had already left about 30 minutes before with a car loaded up with our stuff! She’s coming back!!! Ferris will be admitted this afternoon with plans to be transplanted early tomorrow morning. Kidney transplant . . . take 2!!!”

The Backmeyers have been in Vancouver since late December after getting a phone call advising them that a kidney had been found for Ferris. However, after getting settled in Vancouver and preparing for the big day, the surgery was called off.

As Lindsey put it at the time, the medical team “came in about an hour ago now and told us that the retrieval surgeon contacted him with not-so-great news about the kidney.”

She added: “The surgeon said he always asks himself if he would put the kidney in his own daughter and he said absolutely not to this one. That’s good enough for me.”

That brings us to the present. . . .

Ferris was diagnosed with Mainzer-Saldino syndrome shortly after birth. Kidney failure quickly followed, meaning she has been on dialysis — either peritoneal (PD) or hemo — for pretty much all of her short life.

Ferris had been having issues with doing PD in December when the call came about a potential transplant. Because of those issues, she had been scheduled to return to B.C. Children’s Hospital in January to be transitioned to hemo.

That early January transplant didn’t happen, but Ferris stayed in Vancouver and made the move to hemo. It was just last week when she was transitioned back to PD. And, seemingly without a new kidney in sight, the family — Ferris’s older sisters, Tavia, 9, and Ksenia, 7, also have been in Vancouver — was readying to return to their Kamloops home. Ferris’s father, Pat, is attending school in Kamloops, so has been putting on the miles as he spends time in both cities.

And, as you will have noted by Lindsey’s post, her mother, Leslie, was already en route to Kamloops when the call came on Friday. Grandma turned around and headed back, of course.

And now the excitement will be palpable as everyone awaits Saturday morning.









If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca

——

Vancouver General Hospital Living Donor Program – Kidney 

Gordon and Leslie Diamond Health Care Centre

Level 5, 2775 Laurel Street

Vancouver, BC V5Z 1M9

604-875-5182 or 1-855-875-5182

kidneydonornurse@vch.ca

——

Or, for more information, visit right here.


Do good, feel good! Register to be an organ donor and get that warm fuzzy feeling. 1 organ donor can save up to 8 lives. Taketwominutes.ca #TakeTwoMinutes 

What a kid! Smiling Ferris turns 4 . . . Scully looking for living donors . . . Nova Scotia opt-out program looking good

Ferris1
Despite a medical procedure earlier Friday, Ferris Backmeyer was able to have a great sucker-sucking time at her fourth birthday bash. (Photo: Lindsey Backmeyer/Facebook)

Ferris Backmeyer celebrated her fourth birthday on Friday in Vancouver.

Ferris, who is from Kamloops, underwent a medical procedure earlier in the day — she also had one on Wednesday — before being able to take part in the birthday party mostly planned by older sisters Tavia, 9, and Ksenia, 7.

Ferris2
When Ferris got back from the hospital, her big sisters had their Vancouver residence all decked out and it was time to party. (Photo: Lindsey Backmeyer/Facebook)

Ferris is an amazing young lady, having already gone through what would seem to be a lifetime worth of medical situations. If you aren’t aware, she has been in kidney failure for most of her life, meaning that she has been doing dialysis — either hemo or peritoneal — for most of that time.

“Being in kidney failure is all she knows and I can’t wait for her to be free of dialysis,” her mother, Lindsey, wrote on Facebook. “I can’t wait to see how she’s gonna soar!”

Having gained the necessary weight, Ferris has been on the transplant list for almost a year now and, after one false alarm earlier this month, her family can only continue to wait and hope.

So how is Ferris at 4?

According to Lindsey, “Three was such a big year for her. She had very few words a year ago and now has sooooo much to say. . . . She has endured a lot of medical procedures and I’m always so amazed at how well she does. She’s showing all the nurses and doctors her sassy personality and, aside from being ridiculously cute, she’s pretty funny too!”

It’s never a fun time when your child is on the receiving end of a medical procedure, and that was the case for the Backmeyers on Wednesday and Friday.

But after Friday’s latest adventure was over . . .

“The ship must sail on so to speak,” Lindsey wrote, “and we had a birthday to get ready for. Being true to myself I was up until 2 a.m. finishing the piñata . . . she ‘lubbed’ it!

“She’s really where one would expect if not better for being post op. Lots of sitting and playing (Friday) and standing only to brush her teeth before bedtime. Regular Tylenol and pretty sore at times needing to lay down. We got to bring her home after dialysis and the girls were soooo excited! They had the place all set up. It was perfect.”

Now about that kidney . . .


You may recall hearing or reading about Scully White, the gentleman who operates a hot dog stand at a Canadian Tire in Abbotsford, B.C., and donated a kidney to a customer before Christmas. . . . Well, White now has launched a campaign — It’s For The People — aimed at finding live kidney donors. As Vikki Hopes reports, White “has about 10 people looking for kidneys and about 12 donors who have started the process of blood and tissue sampling.” . . . Hopes has a whole lot more on this story right here.


The head of Nova Scotia’s organ donation program is cautiously optimistic the new presumed consent law is being embraced after seeing the latest numbers on the province’s opt-out registry,” writes Carolyn Ray of CBC News. “Nova Scotia became the first place in North America to switch to an opt-out organ and tissue donation law on Jan. 18. It presumes all adults consent to be donors, unless they say otherwise. Just 10 days after the law was implemented, the Department of Health and Wellness says 11,800 Nova Scotians have registered to opt out. That’s about one per cent of the province’s population.” . . . Ray’s complete story is right here.








If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca

——

Vancouver General Hospital Living Donor Program – Kidney 

Gordon and Leslie Diamond Health Care Centre

Level 5, 2775 Laurel Street

Vancouver, BC V5Z 1M9

604-875-5182 or 1-855-875-5182

kidneydonornurse@vch.ca

——

Or, for more information, visit right here.


Want to feel awesome in less than 2 minutes? Register as an organ donor today. 1 organ donor can save up to 8 lives. Taketwominutes.ca #TakeTwoMinutes. 

Zach recovering after fistula surgery . . . Ferris finds two new friends . . . A kidney recipient says thanks


Zach16Zach Tremblay and his mother, Jana, arrived in Kelowna on Monday evening, and the 17-year-old underwent surgery on Tuesday morning.

He was in recovery later in the afternoon, at which time Jana reported:

“He is alert and awake with some pain.”

Zach and his family live in Robson, B.C., across the Columbia River from Castlegar. He is in need of a kidney transplant — would you consider helping? — and had been doing peritoneal dialysis (PD) on a nightly basis at home. However, it began to lose its effectiveness late in 2019, so he and Jana ended up at B.C. Children’s Hospital in Vancouver early in January and he was transitioned to hemodialysis.

Back home, he has been travelling to Trail, which is about 30 minutes from Robson, for his dialysis runs. After his Monday run, Zach and Jana left for Kelowna.

On Tuesday, doctors inserted a fistula, which will make doing hemodialysis easier, while also removing his PD catheter.

Zach was becoming more alert as Tuesday afternoon wore on, and Jana was hoping that he would be released so that they could spend the night with relatives in Kelowna. Either way, Zach is scheduled for a run this morning (Wednesday) in Kelowna.

“We will see how he’s feeling and decide whether to come home, or stay one more night,” Jana wrote on Facebook.

She closed with: “We sure appreciate each and every one of you loving and supporting our family.”

UPDATE: Zach was released from hospital last night, so he and Jana are overnighting with relatives in Kelowna. He will do a dialysis run this morning at 7:30. If he is feeling well enough after that, they will head for home. Otherwise, they will remain in Kelowna for the day to allow him to rest.


What follows is a note received recently by a kidney donor from the person who has a new lease on life having received that kidney:

“Thinking of you today. Anniversary of my Kidney is here again. A huge thank you for your willingness and your sacrificial donation. You are the angel that just showed up and caused my life to thrive again. Blessings to you!

“I am healthy and things are going well.

“Praying you are doing well. 

“May God’s love and protection surround you and your family.”

Yes, I get a lump in my throat and things get a little dusty when I read things like that because Dorothy and I have driven that same road. There are no words to explain how much that gift of life means.


FerrisFriends
Ferris found two new friends while she and her family explored Granville Island this week. (Photo: Lindsey Backmeyer/Facebook)

Meanwhile, the Backmeyers continues to explore Vancouver’s waterfront between having to get Ferris, 3, to B.C. Children’s Hospital for her dialysis runs.

Ferris, you’ll recall, was doing peritoneal dialysis at home in Kamloops when an infection reared its ugly head and brought all of that to a screeching halt. Her PD catheter was removed because of the infection, and she has been doing hemodialysis for the past couple of weeks.

However, Ferris has had some struggles with hemo, and her mother, Lindsey, reports that “we have a surgery date for a new PD cath and it’s a week sooner than we were originally told.”

That surgery now is scheduled for July 27. If all goes well, Lindsey says Ferris will be admitted on July 26 and “should only be in a couple of days before being outpatient again.

“It’s hard to imagine having to go through this surgery again . . . and the recovery, but at this point I just want to bring her home.”


If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


Mike





kidney

KPD transplants remain on hold . . . Waitt! He was going to donate to ex-wife’s husband, but . . .

According to Canadian Blood Services (CBS), all kidney donations through the Kidney Paired Donation (KPD) program have been on hold since March 16, and will continue that way for an indefinite period.

CBS provided some information regarding the COVID-19 situation on Wednesday in a news release headlined: A statement from the Canadian Organ and Tissue Donation and Transplantation Community . . .

The statement begins:

“In the evolving COVID-19 pandemic, administrative and medical leads of the organ donation and transplantation community across Canada are meeting regularly to collaboratively develop recommendations that can be used by provincial organ donation organizations and regional transplant and donation programs to guide the administration of organ and tissue donation and transplantation services.”

It continues with:

“The pressure COVID-19 is putting on Canadian hospitals is affecting organ and tissue donation and transplantation. While non-essential surgeries are paused, urgent and lifesaving organ and tissue donation and transplantation is proceeding on a case-by-case basis, and in collaboration with provincial and hospital administrators. It is expected that decisions about whether to proceed with donation or transplantation may differ from one jurisdiction to another.

“All living donation and transplant surgeries related to the Kidney Paired Donation program have been postponed for a minimum of six weeks, effective Monday, March 16. Surgeries will be rescheduled once there is consensus that it is safe to do so for both donors and recipients. In a number of jurisdictions eye and tissue donation has also been reduced or suspended. Measures are in place to ensure patients who need tissue grafts for emergency surgery will receive them.”

If you would like to see the complete statement, it’s right here.


Barry Waitt of Whitehorse was going to donate a kidney to his ex-wife’s husband. But then hisC ex-wife was declared healthy enough to donate herself, so that’s the way it went. Barry had gone through the entire process so he then decided to go ahead and donate a kidney anyway. That’s what happened on Nov. 13. . . . But there’s a whole lot more to his story and he writes about it all right here. After reading Barry’s story, I have to wonder if there isn’t a TV sitcom in there somewhere.


Scott Kidd is the West Coast scouting supervisor for the Oakland A’s. On Dec. 19, he thought he had the flu. A few days later, he was on life support, in need of a heart and one kidney. On Jan. 15, he got both. . . . Susan Slusser of the San Francisco Chronicle has his story right here.




Welcome back! Zach and his mother finally are home . . . Green Shirt Day moves online

ZachHome
Zach Tremblay and his mother, Jana, were riding high on Saturday as they headed home for the first time in almost three months. (Photo: Jana Tremblay/Facebook)

There was some good kidney news on Saturday as Zach Tremblay and his mother, Jana, headed home to Robson, B.C., after spending almost three months in Vancouver.

Zach, who turned 17 while they were living at Ronald McDonald House, was transitioned from peritoneal dialysis (PD) to hemodialysis while in Vancouver.

Zach had been doing PD at home in Robson, which is across the Columbia River from Castlegar. However, as 2019 wound down there were some issues and his medical team decided that PD was losing its efficiency. So they changed him over to hemo.

Unable to do hemo at home in Robson meant that he would have to travel to Trail and the Kootenay Boundary Regional Hospital there. However, the unit there wasn’t able to free up room until now. Zach will be travelling three times a week to Trail for hemo, with his first run on Tuesday.

Jana announced their departure via Facebook:

“So this is happening!! Homeward bound with Dad!! Trail is ready for Zach so we are home to stay for now. Thank you all for your love and support over the past few months.

“We appreciate each and everyone of you.”

Now . . . if only we can find a kidney for Zach.

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca





All about washing your hands, suppressed immune systems and a Kidney Gala . . .


Have you ever wondered what life is like for a transplant recipient — be it heart, lung or kidney — living with a suppressed immune system? . . . “For transplant patients,” writes Blair Crawford of the Ottawa Citizen, “the fear of infection is a daily fact of life. They all take drugs to suppress their immune system to reduce the risk their new organ will be rejected. (Tina) Proulx’s life depends on the Purell hand sanitizer and Lysol and Clorox wipes that are now being swept off store shelves and stockpiled by panicked shoppers.” . . . Proulx has a double lung transplant in December 2015. . . . Crawford has written a terrific piece that explains it all, and it is right here.


The eighth annual Kidney Gala was held in Vancouver recently, and Fred Lee, who handles Fred Lee’s Social Network for the Vancouver Province, was one of the co-hosts.

Stephen Gillis, who 17 days earlier had undergone a kidney transplant, and Michael Teigen, who was Gillis’s donor, were on hand and received a stirring standing ovation.

For more on the Kidney Gala, including photos, click right here.

——

BTW, congrats to Stephen Gillis and his Vancouver Minor Atom A1 hockey team for their championship. They won the PCAHA Presidents Series title earlier in the week.

If you have been following Gillis’s story over the past year you know just how much this hockey team means to him.

Here’s a bit of what Gillis posted on Facebook:

“Thank you to our friends at Burnaby Winter Club for a spirited series. You’re a team of class and sportsmanship and it has been great to play you all year. Thank you for your team’s kindness and support during my health journey.

“So proud of our squad. On and off the ice they gave 110% and would never quit. This was a special team. Excited to see the great things these kids achieve. Stay relentless.

“Thank you to my amazing parent group for an outstanding season. It was a privilege to coach this team and you all jumped on board with my plan. I am so grateful for your support of the team, our culture and mission, and the constant support, kindness, and generosity you have shown me throughout my health issues. Truly, thank you.

“We dedicated tonight’s victory to young Zachary Tremblay and his mother Jana. Zach has become a hero to our team. At 16, he is currently on dialysis and is in need of a kidney donor (O negative or positive blood). We want to help Zach’s message and find him a heroic donor. Please spread the word and let’s find Zach a donor.”

——

If you are interested in being a living kidney donor, more information is available here:

Living Kidney Donor Program

St. Paul’s Hospital

6A Providence Building

1081 Burrard Street

Vancouver, BC V6Z 1Y6

Tel: 604-806-9027

Toll free: 1-877-922-9822

Fax: 604-806-9873

Email: donornurse@providencehealth.bc.ca


Harry Bryant, a grandfather who lives in Vernon, B.C., has turned to Facebook in an attempt to find a living kidney donor. If you’re on Facebook, you are able to check out his page — Grandpa Needs a Kidney. . . . Caitlin Clow of the Vernon Morning Star recently did a story on Bryant, and it’s all right here.





A note for transplant recipients as BC Transplant changes brand on immunosuppressive drug

If you have been the recipient of an organ transplant, you need to be aware that BC Transplant, as in the tweet below, “is changing brands of immediate release tacrolimus from Prograf to Sandoz . . .” Tacrolimus is an immunosuppressive drug that works to keep the body from rejecting the new organ that really is from a foreign body. . . . For more information on the change and information sessions that have been scheduled, check the link that is available through this tweet.